The instant I received news that I was carrying a child my life changed forever. Almost every decision was made with baby in mind. Our family was set to grow by one. As nervous as I was in every way, I was sure that it would be an amazing change.
Fast forward nine months to the morning of Christian’s birth. It was not planned so I had no idea just how much my life was about to change that night. That morning I was relaxed, stretched out on my couch reading a magazine article about a family with a newborn. It was probably the last uninterrupted magazine article I read!
Christian was born four minutes shy of 6 am. It was indicative of his waking time once out of the womb, actually that was him sleeping in! I can clearly recall the fear that filled my body when they wheeled him into the room and I realized I was his mother. The amount of immediate responsibility that occupied my heart frightened me. How would I take care of this tiny, perfect being? I was unprepared!
He and I would learn about life alongside each other. I analyzed his every move. Was I mothering him right or wrong? How did I know if I was making the right decisions? My mom was there to guide me but ultimately I was his mother!
This was a tortured time in my life. I read as many books as I could and yet I never felt like I knew what I was doing. First off I couldn’t get my son to sleep! Of course, I assumed it was something I was doing. Now I look back and wonder if he knew? Did his little soul know that we had limited time together?
Here I was with the most precious gift in the world. All I wanted was to give him the best. It was so important for me to make all the right decisions. I couldn’t let him down. Now I know all that truly mattered was that he was taken care of and felt loved. I am sure people tried to tell me that at the time but as a neurotic first time mother I couldn’t get past the idea that I was going to “mess him up.”
As much as I wanted to protect this little being, I was unable to. Control was illusive. Fortunately Christian taught me that just in the nature of his personality. He loved to be mischievous and daring, in many ways. He taught me that I had to let him be, otherwise I would crush his spirit. This was a gift he gave to me and to my living children.
All three of my boys have climbed, jumped off of, and attempted many stunts that have made my heart leap into my throat. It is part of who they are. It almost became even more important after losing Christian that they see that they can, and should, take risks. Sometimes they tell me I worry too much and want them to be too careful. Sometimes that is probably true.
Just like with Christian I want to give them the best of me. I still fear “messing them up.” In my heart though, I know that they feel loved in every cell of their being. I will continue to make mistakes. Obviously I cannot control and protect them from everything but I can love them through everything. That includes my mistakes and their mistakes. I hope that all the mothers reading this today give themselves the gift of self love. Love your child as best you can and know in your heart that you are doing the best you can for them. Love never dies. Love to Heaven…
Sometimes the weight of grief is unknown until a moment, day or event passes. This is how it was for me this past weekend when my middle child made his First Communion.
In the weeks leading up to the event, daily life had me running to baseball practices and games, working the book fair, submitting my writing to different sites, gaining some new opportunities (stay tuned for more about that!) and even a trip for myself to Urgent Care. It left me little time to mull over the latest milestone that was about to be reached. This was probably a blessing.
Lately I have been referring to the “beginning” or “early days” in my writing. As I wrote in last week’s post, my journey is forever changing and evolving. When I look back to the early days, immediately after losing Christian, and even the years that followed, and compare it to now I can see true evolution. In the past if I had been preoccupied leading up to a big event, the aftermath would have left me completely depleted. Over time, however, I have processed and experienced the pain that goes along with my living sons experiencing things their brother never got to.
Anthony’s Communion was beautiful and we are so very proud of him. It was also the quintessential depiction of joy and pain existing together in the moment. Our family was seated in the very first pew. As I watched my eight year old enter the church, hands folded dutifully as prayer hands should be, pride rushed through me. Love poured out of me and a smile graced my face.
As the mass continued on and mention was made of those who are deceased, the weight of grief fell. It fell hard. The storm of sadness moved in and instantly fat tears began to drop. For a little while it made the sunshine of joy invisible. The sun remained there, it just became clouded over by the storm that came rolling through. And such is life.
Anthony’s big moment approached and he was excited to receive his First Communion. In his eyes the warmth of the sun reached me. The storm had passed. The day continued and all had a good time.
The weight of the grief I had been carrying around, presumably for the weeks leading up to the event. was only truly felt on the day after it. I awoke with a surprising amount of relief. This was a revelation for me. The physical, emotional and mental relief so evident that I could not ignore it.
It brought me back to just a year ago. Last June Christian’s friends moved up from Elementary School to Middle School. In the weeks leading up to the ceremony, he was remembered and honored in different ways. At the actual moving up ceremony a single red balloon was attached to an empty chair in memory of my beautiful child. This is a gift that all grieving mothers wish to be given.
Again we see the juxtaposition of joy and pain existing together. My gratitude is greater than words for all of these thoughtful gestures. They also were a painful reminder of the fact that Christian is not moving up to Middle School. With or without him being honored the deep sadness would have been present. It warms my heart that his classmates, their parents and the school, made remembering him a priority.
Life is not easy. We tell our children that when they are young. There is no easy fix and we are all due some pain in our lives. We cannot avoid these storms. We must learn how to get through them. The weight of grief has lifted for now. It will be back. I am sure of it. I will get through it again. I am also sure of that. Love to Heaven…
In my last post I wrote about how to help a grieving family. It was focused more on the parents and the family as a whole. This week I thought I would provide some insight on how to help children who are grieving. My children were one and three when we lost Christian. Unfortunately we knew the loss would impact Anthony at his age. Many people were of the opinion that Nicky would not be affected as much since he was not yet two years old. As time goes on I am certain that this is not true.
The task of raising children who grow up with a sibling in Heaven is no easy feat. At their ages there were many questions about death and Heaven since they had no point of reference. When children are a little bit older they understand the concept of death more but Heaven is still elusive, even to adults.
“Everyone, including children, must understand four basic concepts about death to grieve fully and come to terms with what has happened. Teens, and even adults, may have a full and rational understanding of death, yet still struggle to accept these basic concepts when faced with the death of a loved one.”
The four concepts we must understand are that death is irreversible, all life functions end at the time of death, everything that is alive dies and there are physical reasons for death.
Recently in our community a beautiful little girl gained her wings after 13 short years here on Earth. I do not know the family personally but I do know what occurs in the wake of losing a child, for the family and community. I do not, by any means claim to be a therapist, just a mother who is raising her children after trauma and loss.
While questions and answers will differ based on the age of grieving children, some things will not. The absolute most important piece of advice is to keep the door of communication open with a grieving child. Provide him or her with a safe environment in which they can openly discuss the person who has gone ahead to Heaven. Allow the grieving child to share his or her emotions.
I can’t speak to what this exactly looks like in a teenager. I would imagine just as with younger children, grief and confusion will be disguised behind other emotions. We had outbursts, uncommon behaviors, difficulty sleeping, regression and even survivor guilt with our children. Almost five years later we see anxiety and anger sometimes. We see sensitivity to certain triggers, not always obvious ones. For example my children still play “dead”, which haunts me, but is normal, age appropriate behavior for them.
This brings me to my next point. As adults it can be so hard not to put our own anxieties on our children. The grieving child can be even more sensitive to this. The anxiety that arises within me when my boys “play dead” is because of my knowledge, experience and relationship to the word and all that I have lost. This is not how my children see it. They do not yet have the life knowledge, experience and understanding that I have. There is no need to add any more layers of sadness or anxiety onto their own grief.
If, however, your child is experiencing anxiety about the finality of his or her own life or someone else’s, this is normal after an untimely death. Abigail Marks, PhD, a clinical psychologist who specializes in grief says, “See if you can find out more about their specific concerns and show that you take their feelings seriously. When kids feel reassured and understood, anxiety can begin to shrink”. After losing Christian we were advised to be very honest with our children. We even had a “standard family answer” so that we were all consistent about death. Again, this was age appropriate but we said, “Christian is in Heaven now but he will always be in our hearts and our memories”. We explained that him being in our hearts was the love we have for him and will always have for him. The book, The Invisible String, reinforces this idea. It is geared towards younger children, explaining that we are connected to all of the people we love with an invisible string, even those who are in Heaven.
My husband and I are firm believers that Christian’s energy is still all around us. He was an extremely persistent child his whole life with us and he continues to exert his persistence from Heaven. We are grateful for this. Through odd occurrences, hearts, pennies and dreams, he has proven that he will always be with us. It will never be the way we hoped, but our relationship does continue. It was important that our children understand that too. They have a continuous relationship with their oldest brother. He often shows himself on important days, regular days, almost every day. They even dream of him. He is a part of this family and always will be. Every day we speak his name at one point or another. They talk about him to their friends and they carry on his memory, just as we do.
We have been very careful not to let Christian overshadow our living children. We take our cues from them. They have said things like, “Why is everything about Christian?” or “I don’t want to talk about him right now”. That’s okay. It’s normal. We know that means for a little while after they express these feelings we need to monitor how much we speak about Christian, allowing them to bring him up in conversation. Again, we cannot let our anxiety of him being forgotten override the health of our family.
While we have learned a lot of this on our own as grief is individual to each person and family, we have also worked with mental health professionals since the start of our grief journey. We are blessed with some of the most amazing people in our lives. We thank Christian for this. We believe he put these “angels on Earth” in our path. Their guidance and professional opinion definitely makes a world of difference.
If you are sensing that your child has some emotions inside but is hesitant to let them out there are a few things I suggest you can do with him or her:
Get them moving – Here in New York Spring has sprung! Go for a hike, a walk, play a game of basketball, have a game of catch, even ask them to help you complete a physical task – anything to get them moving. Allowing them to choose and giving them control over the activity will encourage them to open up. My son took Tae Kwon Do for two years and it helped him immensely. We even put a punching bag in the basement as a means for him to work out his emotions physically.
“It turns out that exercise can be an important coping tool to deal with grief and loss, whether it’s the death of a loved one or the end of a relationship.”
Give them a journal – If you have a child who is maybe a little more introverted or does not share feelings as easily, journaling can be a great option. Journaling does not have to be limited to the written word. Art journaling is a great way to process emotions.
“According to grief experts, the task of reconstructing your personal self-narrative is critical in the healing process. A grief journal will provide you with a venue for expression without fear of being judged”.
Encourage music in their lives – Listening, playing and dancing to music are all amazing ways to process emotions. When we listen to certain music, play certain instruments such as the drums or dance around, we are stimulating both sides of the brain.
“Bilateral stimulation… [which] has been demonstrated extensively in studies to create a greater connection between your mind and your body.”
Provide them with creative experiences – Ask if they would like to enroll in an art class, take a painting class with them, provide them with art journal prompts (Pinterest has tons!) All of this helps them to get their feelings out and work through them. Emphasize that it is not the end product that is most meaningful but the process.
“When you are unable to express yourself, but you desire emotional release, making art may help you to do it”.
Grief is a powerful emotion. Loss, especially when a death is untimely, can be very disturbing. Be patient with yourself as you process these emotions alongside your child. Parents will undoubtedly have an increase in their own fears and strong emotions. It is healthy for your child to see you working through this. While I do not advise voicing your fears surrounding how fragile life is, as your child has learned this firsthand, I do encourage you to share your emotions, memories and age appropriate thoughts. For example you may say, “I was thinking about your friend Christian today. Remember how much fun we had the day we all went to the waterpark?” This may spark a conversation with your child, allowing their feelings to seep out. You may also say, “I went to visit Christian’s family today while you were in school. I feel sad whenever I see them.” These are simple statements but ones that your child can relate to. If they see you modelling your own feelings and that your emotions are there too, they will be more accepting of their own. Grief can be very strong and sometimes that can be scary to a child. Through the parent voicing his or her own emotions, it normalizes them.
It feels harsh and unfair that some children are exposed to death at such early ages. We have no control over what happens in our lives, but we can control our reactions. Helping our children learn coping skills when encountering large emotions is a lesson that they will value for the rest of their lives. It is horrible to be learned through the death of a family member or friend but it is something that will always be useful.
Dealing with untimely loss is difficult. As a parent children turn to us for answers we don’t have. There are many times I have said to my children, “I don’t have an answer to your question. It is something I wonder about too”. It’s okay to do that. Parents, be gentle on yourself and do your best. If you feel that you are having trouble answering questions and handling a loss, seek help. Professionals don’t have all the answers either but they have more experience than we do dealing with traumatic situations.
Above all, open lines of communication are the most important. If that means you have to play a video game with your child to get him to talk – do it! Just let him or her know you are here to listen. Sometimes that is all they want. Listening can be harder than you think. Innately, we want to fix our child if he or she is hurting. There are some things we cannot fix. There are some journeys each person has to take on their own. Grief is one of them. We can walk alongside and provide support, but not fix it. Love to heaven…
What do I say to a mother or father who has lost their child? What if I say the wrong thing? What if I make them cry? How about the siblings of the angel? What if death is a topic of conversation when they are around? What if it has a negative effect on them? How can I help the family?
These are all valid, well meaning questions stemming from a place of love. Death is an emotional topic and hard to speak to. When it involves an untimely death it becomes increasingly intense. I can say that there were very few people who said something that really bothered me when Christian passed away. Even those who did, were not saying it maliciously.
I am going to give you my piece of advice that answers any and all questions surrounding an especially emotional death, such as child loss. Are you ready? It’s quite profound.
Just be there for the family in any way you feel you can do that.
If that means you attend the wake, funeral, cook for them, call them every day, text them every day, stop by and check in, take care of their children, give them a wine basket, make a donation to their angel’s fund, go for a walk with them, take them to a yoga class or simply just listen to them talk and cry, you are doing the best thing you can for them. A comprehensive list of ideas can be found here. Some grieving parents will need many people around them and some will need to isolate a little. As much as everyone wishes they could take the family’s pain away, we all know that is not possible. Just be there for them.
Inherently this seems to come easier to the women. Women tend to be more open with emotions and both the grieving mother and friend are able to be more expressive. It can be more difficult with the grieving father. Please don’t forget about him. His pain is just as intense. More often than not he will grieve differently than his wife. An article on the website Love To Know states, “Men often express their grief physically. A grieving father may throw himself into work or projects around the house, or he may take up a hobby to keep himself occupied and avoid dealing with his emotions.” In my own experience I found this to be very true. While I communicated like a rushing river of emotion in every way, my husband tended to be more like the ground after an earthquake. The cracks were deep and full of pain but there was no spouting emotion.
In addition, societal views tend to portray men as the spouse who needs to be “strong”. NO ONE should be expected to be strong after losing a child. Unfortunately I have witnessed people giving my husband this exact advice. It makes me want to scream. As a mom of boys it is something that I am even more conscious of. Given the extent of the trauma my children have experienced at such early ages, it has been a focus to help them learn how to freely express their emotions.
When friends, family and community members see grieving parents in such desperate pain sometimes they rush to provide them with books, resources and information about groups for grieving parents. This can be so overwhelming. I remember receiving information from others almost immediately. Again, it was so thoughtful and completely appreciated. In the beginning I wasn’t able to process or utilize any of it. It pretty much sat in a box for the first six months. The focus of each day was merely based on survival. Sometimes that meant getting through minute by minute. As time went on I did look through all of the things that were given or sent to me. Some of them are resources I still use and some never worked for me. Either way it was the thought that counted.
If you are an immediate family member of the grieving parent you will also have an especially difficult road to travel. As you navigate your own loss you are expected to support the grieving parent. I have seen my family become quite protective over me and my grief. Sometimes things that are said in my presence strike a nerve with my family members as they worry about my reaction to them. When I think about having to watch one of my children grieve his child, while I grieve my grandchild, my head explodes. My parents and in-laws have watched myself and my husband suffer immensely. That road is laden with sadness, guilt and what if’s for them.
As tight knit and close as my own family is, there are days when I can tell that they are “holding back”. They may not sound like themselves or look like themselves. More often than not they will tell me that they don’t share their bad days with me because if I am having a good day they don’t want to upset me. This sometimes happens between my husband and myself as well.
Grief is undoubtedly a tricky road to navigate. Grieving the loss of a child is even trickier. It forever changes everything. Grieving parents will need their family, friends and community to support them for a long time, if not forever. The biggest fear after losing a child is that no one will remember him or her. Parents also fear that after time passes he or she will become less relevant, their names will be spoken less and their absence will become the norm. If you really are committed to helping a grieving family, don’t ever let this happen. Continue to speak the child’s name. Continue to tell stories. Continue to attend memorials and life celebrations. Continue to let the grieving parent know you are thinking of them. Above all, just be there for them. Love to heaven…
Recently I stumbled upon a quote that burrowed into my heart the moment I laid eyes upon it. Unexpectedly it greeted me on my computer screen as if it were my own personal description of how child loss affected my family.
“It is as if each family were a huge ball of yarn; each member a different colored strand woven and wound together. When one member dies, the entire ball must be unwound, the strand removed, and the ball then needs to be put back together and rewound. However, the ball can never be recreated as it was before.”
Jean Galica, Licensed Marriage and Family Therapist is the brilliant author of the quote.
This analogy is so beautiful. It immediately conjures up visions of how my boys enjoy playing with yarn. It usually involves one of them holding a ball of yarn as he frantically runs and jumps around the room, unraveling the yarn ball, causing chaos and mess. Then the other child takes a different color and repeats. At the end we are left with criss crossed colors of yarn, spread across a large space, some of it tangled and knotted. To make use of the yarn we must untangle and roll as much as we can back into a ball. More often than not there are pieces that need to be cut out because they are so badly knotted.
As the shock of child loss sets in and family members enter into survival mode, they often spread apart. Although they are still connected, and their lives are tangled together, each person needs to process loss on his or her own. Even as a mother of two living children, after losing Christian, there was some distance between myself and my living children. The tight interwoven nature of our former relationship had slackened. I was no longer able to love them without the imminent fear of losing them looming over me.
My husband also suffered from the anxiety and fear of losing them. He and I dealt with it very differently. While I found comfort in talking openly about every aspect of child loss, he had a much different experience. He and I remained connected and leaned on one other as we were both attempted to process our own grief. The individual balls of yarn that made up our lives were completely unraveled, tangled, knotted and lacking color.
It wasn’t just our immediate family that was deeply affected. Our family unit is tight knit and my children are blessed to have close relationships with their grandparents, aunt, uncle and cousins. In those early days a few conflicts arose from the tensions of knots. Everyone was sleep deprived, saddened, confused, angry and mainly using all their energy to process the tragedy that struck our lives.
Over time as each person began to process in their own way, the yarn smoothed out. We were able to work through the knots. Slowly each color of yarn became more vibrant again. Each strand became straighter. The connection was never lost. It was just a mystery for some time as to how we would be wound together again in our ball of love.
Slowly, slowly as time went on we wound around the children. They brought vibrancy and joy back to our lives. Our extended family ball of yarn is interwoven differently but still as tight as ever.
Today the ball of yarn that is my immediate family is so very different than the one that started out as the five of us. The ball that contained five individual colors, wound together, was only in existence for less than two years. Nothing will ever heal that part of my wound. Less than two years to have your family together on Earth is devastating.
The devastation we have experienced plays a large part in how our ball was rewound. Galica says a strand of yarn is removed after you lose a child. This is true. It does not disappear however, the fibers of that one strand are merely divided to become part of all of the other strands. No longer an individual but an energy, a spirit, an Angel. Our familial ball of yarn, immediate and extended, will never be put together again in the same way. The beauty lies in all we have learned from tragedy, adding dimension to each single strand of color. Christian will forever be a part of each of us in ways he could never be before. Love to heaven…
I dreamt about my beautiful Christian last night. He was so happy, bouncing around the room like a ping pong with his brothers. The specifics of the dream are blurry but I can recall the most important part, at the end. He came over to me, upon my request, and gave me a hug. His skinny arms reached up, wrapped around my neck and squeezed. It only lasted a second, but it was a second of pure bliss.
Dreaming of Christian is not new. It happens less frequently than I would like but at least it happens. My husband rarely dreams of him. Anthony dreams of him sometimes and Nicky said he never does.
There are so many unfair things about losing someone you love. Does it have to be permanent? Why can’t you get a certain number of dreams a week when you can interact with them? Going from daily interaction to nothing seems cruel. Of course we get signs, and they are beautiful, but I am left wanting more!
I like to think of my dream last night as an early Valentine’s Day gift for me. Hugs and kisses are the best gifts! Young children are so generous with hugs and kisses. They become stingier as they get older. Even with my living children I am always saying, “Come over here and give me a hug and kiss!” Sometimes they do it begrudgingly. Other times they just pretend it is begrudgingly.
My favorite hugs are the ones my boys give to each other spontaneously. If they were a little more savvy they would know that they could ask me for anything they wanted in that moment and get it!
In my last post I wrote about some people that I met at a LiveOnNY workshop over the weekend. As I watched three sisters who lost their only brother my heart truly ached for them. It evoked emotions in me that I knew were there but buried for survival purposes.
My familial dream of three boys growing up together began the day I found out Nicky was a boy. Brotherly bonds are not to be underrated. Immediately images of three boys laughing, loving, playing and fighting together emerged. Then my thoughts expanded to graduations and weddings. I lamented the fact that I would never be mother of the bride. At the same time I fell in love with the idea that I would be the most important female in their lives until marriage. So many hopes and dreams sketched out. My favorite ones were always based on their brotherly bond. Thank goodness Anthony and Nicky still have this but it pains me to know that the brother who was going to “guide” them – okay be their leader in mischief – is no longer here to do that.
Today, the snow is falling in New York again. We are a few days shy of Valentine’s Day – the holiday of love. I found this beautiful project on Pinterest that I am going to use as a way for my boys to record memories of Christian.
Using my emotional barometer I will judge whether we can make it all about Christian or if we should include all three boys. If they seem to feel any bit over shadowed by Christian’s memory then I will include memories for all three boys. Either way it is a beautiful dedication to brotherly love.
My life has not turned out the way I had hoped. There will forever be the question, “what would it be like if you were here?” We will never know. We must relish in the memory of the times with all three of our boys and continue to create new memories with our two living boys. Love to heaven…