No More Grief Shaming

Recently I saw a provoking post in one of the grieving mother groups I follow on Face Book. It said something to the effect of, Stop trying to find the beauty in grief. We can learn to live with our grief but it will always hurt. The latter part is true. The former part, however, is what plagues me.

The author’s words resounded with some of the readers. There were a number of replies asserting that others feel this way too. It’s wonderful that they have found someone who shares their grieving style and perceptions.

It is important to accept the reality of grief. It’s great to be realistic about the fact that it will always be there, but please don’t judge what I do with my grief on my journey.

My agitation lies in the belief that no one should be telling us how to perceive our own emotions or journey. If we choose to find some parts beautiful, so be it. If we choose to focus on the depths of pain, alongside the joy, and not attribute anything positive to our grieving journey, that’s fine too. If we use humor as a relief and are able to find morbid laughter to help us in our journey, it’s our prerogative. If our grieving style encompasses a combination of these, awesome. Grief is so individual, as is our healing process. The important part is to find what works for you.

Claiming that grief should be done in a certain way is “grief shaming”. It results in us questioning ourselves about whether we are doing it right. How about we all just share our journey and whoever relates to a given way finds comfort in that?

We all have enough to focus on. Let’s not grief shame others. We are in it together. Let’s share and support each other. There is no right way to grieve. Find the style and tribe that works for you. Love to Heaven…

Use The Same Ruler For Blessings and Tragedy

Sometimes the ruler we use to measure just how bad things are is the same one we need to use to measure just how good things are. Let me explain. A friend of mine likes to tease me about something I said after losing Christian. In effect, it was this, “You know things are bad when (insert any number of people’s names who I hadn’t spoken to in about 20 years) is sending me food, a donation and/or condolence cards.

After losing our firstborn, Christian, my husband and I received many a card, gift and/or meal from people who we had not be in touch with for many years or never even met. That is the mark of an extreme tragedy.

As I have said many times before, we all go through our own trials and tribulations. The sign of extreme trials and tribulations is when you begin to receive support from people you have not been in touch with recently and/or people you never met. In effect, they are saying no amount of time would come in between my support of someone who has been devastated to this measure. The hardship is so severe that it is hard to avert.

My husband and I are high school sweethearts. Our high school years were filled with mutual friends. We attended a small school in upstate New York, with a graduating class of 200 students. We all knew each other. My husband and I chose to live in the same town because we appreciated that sense of community. Never did we imagine just how much we would need to rely on it. Our community has gone above and beyond. Last year I published a thank you to all who continue to support us.

We have an amazing, tight knit group of friends who, like us, decided to raise their families here because at least one of them grew up in our town. They, too, appreciated the sense of community. There were plenty of people from our town, however, who decided that kind of environment was not fitting for them. After losing Christian, one of the most astounding aspects of the tragedy was just how many of them reached out to us, providing their support in so many ways. It was a true testament to the way we all grew up together.

Many years had passed since we had seen some of our classmates, yet they went so far as to write us and let us know the ways in which our tragedy affected their own lives. It was, and still is, quite touching. Even today when we are in contact with many of our classmates on social media, they let us know that they are always thinking of us.

The depth of our tragedy is so deep and dark that those who didn’t know us or never knew us as parents, provided support. Almost five years later I have come to realize that the depth of darkness is equal to our height of blessings. These people can never take the pain away. They know that. We know that. Their support, love and generosity stays with us today. It helps to lift us.

There is no recollection of the exact support we received from who. There is a strong recollection of who showed their support in any way. Big, small, grand, minute – it truly doesn’t matter how you showed you were there for us. It matters that you did.

So, yes, the depth of our tragedy is deep, dark and awful. The height of blessings and support we receive from others truly help buoy us out of the dark. Do we still fall in to that deep darkness of grief? Yes, we do, but the height of everyone’s support and blessings still helps to lift us out when we do. Love to Heaven….    

 

Letter To My Friend Grieving Her Brother

To my dear friend,

I’m sorry for your loss. I’m sorry that you have to see your mom suffer through losing her grown son. I’m sorry that you have to watch as his wife struggles to carry on each day without her best friend. I’m sorry that you are witnessing your nieces and nephew grieving their father. I’m sorry that your brother is forever gone physically from your family.

I know that your heart is broken to think that the man who could light up a room with a smile will never have that chance again. You miss his larger than life personality and booming laugh. His story telling skills that seemed effortless but always brought the story to life, forever silenced. You miss all this, yet you feel you must be strong for your mom, sister-in-law and nieces and nephew. His beautiful family suffers each day. As time goes on they learn how to live without him but sadness is at the surface.

You go on, learning how to live without him but sadness is interwoven into your very being. You see his spirit live on not only in his children but your children. You speak about their uncle and they speak about him too. Memories are as vibrant as if he were still here, which he is. It is unbelievable to you that just a year ago your brother’s radiant smile and large personality were present at family gatherings.

Supporting family members after a major loss is exhausting and draining. You are reeling from the loss and yet you want to offer strength and comfort to those around you. I don’t envy your position.

Most people are aware of the strain a loss puts on a mother, wife and children. When it comes to siblings, especially grown siblings, they are not as in touch with the deep devastation that remains after the loss.

I see you and I see how devastated you are too. Every happy occasion is tinged with the grief. You are open to expressing your emotions but don’t want to overwhelm others around you as you know they, too, have intense feelings.

I am here for you, my friend. I will listen to you tell stories, happy and sad. I will dry your tears. I will echo your smiles. I will be your support when you have none left to give to anyone else. I am here to help lift you up. I will always send love to you and to Heaven.

Unraveling Grief

Recently I stumbled upon a quote that burrowed into my heart the moment I laid eyes upon it. Unexpectedly it greeted me on my computer screen as if it were my own personal description of how child loss affected my family.

“It is as if each family were a huge ball of yarn; each member a different colored strand woven and wound together. When one member dies, the entire ball must be unwound, the strand removed, and the ball then needs to be put back together and rewound. However, the ball can never be recreated as it was before.”

Jean Galica, Licensed Marriage and Family Therapist is the brilliant author of the quote.

This analogy is so beautiful. It immediately conjures up visions of how my boys enjoy playing with yarn. It usually involves one of them holding a ball of yarn as he frantically runs and jumps around the room, unraveling the yarn ball, causing chaos and mess. Then the other child takes a different color and repeats. At the end we are left with criss crossed colors of yarn, spread across a large space, some of it tangled and knotted. To make use of the yarn we must untangle and roll as much as we can back into a ball. More often than not there are pieces that need to be cut out because they are so badly knotted.

As the shock of child loss sets in and family members enter into survival mode, they often spread apart. Although they are still connected, and their lives are tangled together, each person needs to process loss on his or her own. Even as a mother of two living children, after losing Christian, there was some distance between myself and my living children. The tight interwoven nature of our former relationship had slackened. I was no longer able to love them without the imminent fear of losing them looming over me.

My husband also suffered from the anxiety and fear of losing them. He and I dealt with it very differently. While I found comfort in talking openly about every aspect of child loss, he had a much different experience. He and I remained connected and leaned on one other as we were both attempted to process our own grief. The individual balls of yarn that made up our lives were completely unraveled, tangled, knotted and lacking color.

It wasn’t just our immediate family that was deeply affected. Our family unit is tight knit and my children are blessed to have close relationships with their grandparents, aunt, uncle and cousins. In those early days a few conflicts arose from the tensions of knots. Everyone was sleep deprived, saddened, confused, angry and mainly using all their energy to process the tragedy that struck our lives.

Over time as each person began to process in their own way, the yarn smoothed out. We were able to work through the knots. Slowly each color of yarn became more vibrant again. Each strand became straighter. The connection was never lost. It was just a mystery for some time as to how we would be wound together again in our ball of love.

Slowly, slowly as time went on we wound around the children. They brought vibrancy and joy back to our lives. Our extended family ball of yarn is interwoven differently but still as tight as ever.

Today the ball of yarn that is my immediate family is so very different than the one that started out as the five of us. The ball that contained five individual colors, wound together, was only in existence for less than two years. Nothing will ever heal that part of my wound. Less than two years to have your family together on Earth is devastating.

The devastation we have experienced plays a large part in how our ball was rewound. Galica says a strand of yarn is removed after you lose a child. This is true. It does not disappear however, the fibers of that one strand are merely divided to become part of all of the other strands. No longer an individual but an energy, a spirit, an Angel. Our familial ball of yarn, immediate and extended, will never be put together again in the same way. The beauty lies in all we have learned from tragedy, adding dimension to each single strand of color. Christian will forever be a part of each of us in ways he could never be before. Love to heaven…

Quick Thought: Humor Is A Lifesaver

We just got the call here in New York that today is a snow day. I couldn’t resist writing a little something to go with this humorous meme. Give me an hour or two after my kids are awake and my disposition might not be as light! For now though everyone is still sleeping in their own beds. That means no one is smushed so close up against me that I have to get out and walk to the other side of the bed so I don’t fall out! That means no one is rubbing my earlobe. That means creepy baby’s shell of a leg is not sprawled across my face – don’t ask. That means no one has peed on me overnight. That means I have glorious time to myself! Sure it’s way earlier than I want it to be but these may be the only moments I get to myself!

These moments, these times when they cuddle with me in bed, and use me as their body pillow, will be something I miss. I know I will. It’s just hard to miss something when it is part of a regular routine. I can remember with Christian being so paranoid when I got frustrated with him because I wasn’t enjoying him enough. How many times do people say,

“You will miss these days.”

Each and every time I heard that or thought that, I became stressed. That stress caused me to be even more short tempered. In the end that reminder may not be the best. Keeping the idea that I will miss this someday in the back of my head seems a much better option for me than dwelling on it.

  • It’s easy to think about how much I will miss this time when my kids are grown. For the most part I am successful at staying present and enjoying my children. Even before losing Christian I feel that this was my approach to parenting. However, after hearing the “poopy song” 56 times in an hour my excitement about being present dims. Then comes the nerf to the butt. Throw in a little fighting and I am looking to lock myself in the bathroom!
  • It goes without saying that every parent has been there. It also goes without saying that we all love these little antagonizers more than anything. It took me a long time after losing Christian to be okay with these feelings. My heart was plagued with such pain. I would give anything to get him back, even at his toughest moments. A friend of mine taught me the power of the word “and”. This changed a lot for me.
  • I can be a grieving mother who would do anything to get her son back AND still be a person who gets frustrated with her living children. In no way does this mean I don’t love them more than anything. It just means I am a human.

  • The love I have for my children is unmeasurable. I will miss when my boys don’t cuddle with me. Hearing “mommy” in their little voices melts me every time, unless they are whining or screaming. There is so much to be missed but it makes it so hard to enjoy if we think that way.
  • Parenting is hard. Sometimes it makes your heart swell a hundred times. Other times it makes you feel like sticking a fork in your eye. Such is life. Humor will get us through those moments that make us want to pick up the fork. One thing I have learned is that humor heals. If it weren’t for the nerf to the butt what would we miss in twenty years?
  • Today parents of children waking up to find out that school is closed, find humor. When you have refereed the 73rd fight and can’t take it anymore, find something humorous. When you have dressed and undressed them for snow for the tenth time, when you have cleaned pee off the floor for the thousandth time, find humor. If you can’t find that, find wine! Both will get us through. Sending good vibes and hopes for humor to all of you today! Love to heaven…
  • Freedom In Sharing Faults

    We all have faults. Some of us are better than others at accepting our faults or shortcomings. Some of us have a more difficult time. I fall into the latter category. It is easier for me to accept other’s faults than my own. I am kinder to others than myself when the topic of personal faults comes up. I’m not alone.

    No one is perfect. How many times have we heard that old adage? We hear it repeatedly because it’s true. Yet so many of us strive for perfection or close to it in ourselves. When our shortcomings present themselves we feel disappointed and angry. Many times for me this turns into shame and then the mean voices begin. I wish I could tell you how to make those stop. That is still a work in progress for me. What I can tell you is that sharing and connecting with others helps in quieting those voices.

    Healing is in our own heart’s message. Once we hear it we can surround ourselves with people who reflect that message. Share your pain. Healing is in connection.             – Cara Martinisi

    It’s no secret that I wear my heart on my sleeve. My writing is proof of that. I don’t believe this kind of sharing or level of sharing is for everyone. I do believe that opening up to another human being who you feel a deep level of connection and comfortability with will change your life. I don’t mean opening up about the difficulties you have on the surface. That’s great too, and we all need that, but when we go deeper in our relationships, friendships and connections that is when your faults and shortcomings lose the momentum to instill shame.

    Shedding the shame of our faults and learning to make peace with them can only make us better people. Connecting, beautiful soul connections, only enrich our lives. Many times when I ask Christian what message he wants me to share with everyone it revolves around kindness and connection. There is something there. The more connected we are to each other, the more kindness spreads.

    Connection to others lets us know that we are all important. Children are more visibly receptive to this than adults, but that is only because they are more open. Engage a child and see how their face changes. When we take interest in each other’s lives we are interwoven emotionally. This is valuable on all levels. It is important to connect casually, deeper and so deep that your soul shines through. Connection promotes kindness. Kindness helps us to be nicer to ourselves and those around us. If you want to quiet your mean voices, if  you want to take away the shame associated with your shortcomings, connecting will help. Love to heaven…

    It Takes A Village – A Love Letter

    Dear Family, Friends, Teachers and Community Members,

    If you know my family at all, my story at all, this letter is meant for you to be reading. Many, many times my husband and I have attempted to put our gratitude into words. It never seems to reflect the full magnitude of just how grateful we are for all you do. I don’t expect this to do it either but I will try once again!

    Thank you – two simple words, yet such strong meaning. YOU have been a part of what has saved us over these four years. Beginning with the amazing outpouring of support when we first lost our dear Christian continuing right through today. Your presence, hugs, love, listening ears, meals, cards, walks, play dates, tears along side us, monetary donations, every effort to show he will never be forgotten, all of it. YOU are helping to raise our children every day. Just knowing that you are there, ready to do anything to make our life more manageable is the biggest blessing.

    I have struggled with my faith since this all happened. I continue to figure it out. One thing I know for sure is something my sister told me early on. “All of these people are God.” It’s true. You are all the epitome of kindness, love and true, divine light. We couldn’t go on without you. YOU have all been true teachers in our children’s lives. You have shown them through your example just how important it is to help those who are suffering or in need. The fact that your level of support and love has not wavered is the most beautiful thing. YOU are all heroes to us.

    I would be remiss if I didn’t specifically pay homage to our amazing parents and my sister and her family. Through all of their suffering they are always conscious of our feelings. They are always sensitive to our needs. They deal with grief twofold. Not only do they feel the pain of missing their grandson, nephew and cousin but they feel the pain of watching their daughter, son, sister and children navigate this life. They are always here for us. Without a doubt their presence in our lives has helped our family to carry on.

    We cannot thank you enough for everything. You have helped us to find beauty in pain. You have inspired us to pay it forward and create an organization that does just what you have done. We will help families who lose children suddenly. YOU have shown us what to do. So many of you ask us what to do for a grieving family. You have done it. Be there. Honor their angel. If the family knows they can count on you for love and support, you are doing just what they need. Thank you – two simple words, yet such strong meaning.

    With love from us and heaven,

    The Martinisi Family