Gratitude Done My Way

Sometimes living each day can feel like a whole lot of work. There are mornings I wake up and have a silent conversation with myself about all that lies ahead in the coming hours. The voice inside my head chides me whenever I even think this way. My firstborn had less than seven years to live, less than seven years of mornings to wake up and be excited about. With each day I should be overflowing with gratitude just to have the chance to make memories with the ones I love.

Did you hear that should in there? “Shoulds” indicate judgment on my part and never bring me anywhere positive. I am beyond grateful to be making memories and be an active part of my loved one’s lives. Yesterday, as I was entering Target, both children were holding my hands in the parking lot. I felt so much gratitude to have their little hands inside mine. I do focus on the little/big things. When I break it down and simplify it like that, I feel a little less selfish and ungrateful.

Give thanks for a little and you will find a lot. ~ Hausa Proverb

Gratitude is a buzz word right now. As a grieving mother, I feel like I need to be even more grateful as a way to honor Christian and all the days he never got to live. In my quest to be as grateful as possible, I decided to start a gratitude journal. There are an abundance of journals for sale for this exact purpose.

Putting my gratitude on paper proved to be harder than I expected. First it meant that I needed to have quiet time at night. That only happens after the boys are asleep. Then it meant that I had to a) be awake after they fell asleep and b) have the energy to actually write down my gratitude list. Unfortunately these things are a rarity. The added pressure I was putting on myself about needing to be extra grateful, because I know how precious life is, was only making things worse.

Things were not going as I wanted or planned them to. Furthermore I was failing at honoring my angel. Wow. That was a tough pill to swallow. If I were hearing this from a friend in my position I would sit her down and have a strong talk with her about how she needed to go easier on herself! My message would encompass the truth that she has to be gentle with herself, celebrate her strengths and be flexible in areas she doesn’t feel strong in.

Despite my empty gratitude journal lying on my nightstand as a constant reminder of my flaw, a new routine developed organically. Each night before my son/s enter into slumber we have quiet cuddle time. It is one of my favorite times of the day. As I laid there with my youngest son one night, I started reflecting on all the positive aspects of the day. It became a habit. Now it is a particularly beautiful part of the bedtime routine for me. It requires no extra items other than my memories and inner voice.

As grieving parents we often carry the added weight of having to revel in the positives. We know just how fleeting a life can be. We know just how quickly an irreversible change can take place, leaving your heart forever cracked. It does put more pressure on us. The truth is we will never constantly be happy or grateful. We are still humans. Yes, we know one of the worst pains on Earth. Yes, we will forever honor our children. Yes, we will celebrate joys. There will be times, however, when maybe we should be more grateful and we are not. That is okay. As a grieving mom this is just something else that I need to accept. I honor Christian in numerous ways. The guilt will have to take a back seat for now. Love to heaven…

 

Hope Is In Every Step

Hope. We all need it to survive. After Christian passed away it was completely unfathomable to me that I would ever feel it again. Yet I have and I do. That is not to say that it doesn’t waver, because it does.

This particular topic is on my heart tonight as I’ve just returned home from an amazing workshop at LiveOnNY. LiveOnNY is a non profit organization that works to procure organ donation in the Greater New York area. The beautiful thing about this organization is that they are actively working with the donor families after their loss.

When Christian passed away I knew immediately that his wishes would be to help someone else in need. After all, our body only houses our soul. Without hesitation we answered “yes” when they asked if we wanted his organs to be donated.

Right there we chose hope. There was no chance of our little boy coming back to us but there was a chance that his organs could offer hope for someone else, and they did.

In the moment when they asked us about organ donation I didn’t feel any bit of hope. I didn’t feel it after we said yes. I didn’t feel it for a very long time. We are four and a half years walking this journey and there are still days when hope eludes me. Most days though it is somewhere in my soul.

How did I get to a place where I feel any semblance of hope? Sometimes even I wonder. I know I have an abundance of love and support that surrounds me. That certainly helps. I also know that I made a conscious decision to carry on. It is something that I work on constantly. Some days it feels fairly simple. Other days it requires my every effort, every minute of the day. I feel like I am walking through sludge.

Self care, a topic of today’s workshop, is a large part of me being able to find hope again. From the very start I tried anything that I thought might offer the tiniest bit. That included acupuncture, therapy, walks with friends, yoga, art, exercising, writing, attending grief groups and other activities that are not coming to mind right now. Some worked and some didn’t. Some I still utilize as self care tools today. Most importantly my willingness to try things helped me to find a way to survive this unthinkable loss. The key to hope is finding what works for you.At today’s workshop I met many amazing people. For some the loss was extremely new and raw. It took such courage for them to be there. Their desperation to find any sort of relief written all over their faces and evidenced in their tears. My heart broke for them. It is not so long ago that I was in their place. Even in all I tried I don’t think I had the courage to attend a workshop like this so soon after our loss.

I saw myself in these people. One woman, a writer, unsure if she will ever write again. Another family of a mother and three daughters who lost their only brother, all clearly devastated. I was them. I am them. Time has just taught me how to integrate the pain into my life today. Sadness and joy live alongside each other in my world, as it will for them.

That’s hope. Newly grieving people feel devoid of it, but they don’t realize that they are already building it. Every step one takes to find relief from the blinding pain allows hope to filter in. They may not feel it today, tomorrow or next week. It takes time to chip away a big enough space to see the hope shining through. It will. Each time one wakes up and makes it through another day. That’s hope. Pepper it with a few healthy attempts to relieve the pain and you are building hope. It doesn’t feel like it, but you are.

Thank you to the amazing staff at LiveOnNY for the workshop you led. As one participant said it so beautifully to them, “You should feel great about yourselves today, knowing you are making a difference in lives”. They were my dose of hope today. Love to heaven…

Expectations and Truth

Yesterday was one of those days. You know what I am talking about. A day where just about all you can handle is sitting on the couch and watching movies. My boys went into school at 10:30 and were home by 1:30, due to the weather. Thank God they made it home safely. While I had hoped for a longer amount of childless time, I am so grateful that the school district made a smart decision.

It definitely interrupted my movie watching though. Between being asked for snacks, arguing over every little thing and then being told that they really didn’t want the dinner I had cooked I was ready to explode. Then when I said, “I need a break!” It was met with my six year old’s answer, “That’s because you hate us.” Aaah, yes, pile on the mom guilt.

Being a mom is hard. Being a parent is hard. Being an adult is hard. Anyone who is reading this can probably agree with at least one or all of those statements! How can it be that some days you feel on top of the world like you have it all under control and the next day you are drowning? Some of this is certainly due to my circumstances but I do not believe that only bereaved parents feel this way. I know that is not true.

Recently I was having a conversation with a friend about how a few nights ago the bedtime routine went splendidly. So much so that Anthony, my eight year old, thanked Nicky for the hug he gave him in school that day. Then Nicky thanked Anthony for being included in a game with his friends. It ended with them both saying, “I love you” to each other. Not sure who those kids were but before becoming a parent I actually thought that there would be way more days like that.

When we examine what our beliefs or expectations are compared to reality, accepting reality can sometimes be so hard. In the case of raising children, you learn pretty quickly that there is a huge divide between what you expected and the truth. I will never forget a time when Christian threw a screaming fit in an outdoor mall and I had to carry him out. It was humbling. That’s for sure. At the time I felt like the biggest failure as a parent. I was still stuck in the pre-child mindset that my child would never do that. I can actually hear some of you laughing out loud because you know what I mean!

The me of today knows that the exact opposite was true. I was doing a great job as a parent that day. Christian was doing a great job of being a kid. We were both doing exactly what we were supposed to be doing. (Don’t even get me started on the supposed to’s.) Nonetheless, it took time, experience and multiple children to learn this.

Expectations are the measure by which we define where we want to be. If we set them too low, we are not accomplishing what we are capable of. If they are too high we experience failure. There are some areas of my life where I am in tune with where my expectations need to be. Other areas I am still learning. The saying, “Patience is a virtue” is a mantra that I repeat quite often. It takes patience, time and experience to first learn where to set your expectations, then how to reach them, then to actually reach them. It is certainly not a linear process. We must experience some days on top of the world and others when we are drowning.

Today I am right in between. I’m not exactly on top and I’m not exactly drowning. After all that madness yesterday I couldn’t bear to even deal with the bedtime routine. I collapsed into bed and asked my husband to put both boys to sleep. Even though he had a long day dealing with the snow, important meetings at work and coming home to a crazy wife who was still the pajamas he left her in, he did. Thank God. Right before Nicky went to bed he came to me and gave me a huge hug and kissed me tenderly on the top of my head. Just like that I melted. It was a kind of nourishment for the next day, a kind of payment for parenting being so difficult. Never in my imagination could I have known just how hard it would be to parent children. I also could have never imagined just how much I would love these children. Love to heaven…

The Best Christmas Gift

It’s been a while since I have written. I haven’t felt like myself lately. The holidays this year have heightened my grief and anxiety. It’s not this intense every year. Thank God.

Tomorrow is Christian’s birthday. He would have been 11. The usual questions about what he would look like? Act like? Be asking for as birthday and Christmas gifts? continuously flood my brain and heart. I want him here. Sure he would be driving me crazy. He would be one more child fighting with his brothers. His attitude would probably be growing in size since he would officially be a middle schooler. I am guessing his hair would be a focus. He had the most beautiful head of hair. So many guesses. So much wondering. So many dreams turned to angel dust. In a matter of moments.

All of the wondering gets to be exhausting and overwhelming. The memories aren’t any less emotional but at least they don’t involve guessing. Christian was due on Christmas but was born on December 23rd. We brought him home Christmas Day. As first time parents my husband and I woke to find a beautiful baby boy being rolled in to the hospital room on Christmas morning. He was all snug and sleeping in an oversized stocking. It’s the same stocking that hangs on our mantle each year. The sight was so breathtaking and life changing. This little being would be coming home with us in just hours.

As we made our way home we passed our church. The priest had just finished Christmas mass and was outside. We asked him to bless Christian and he did. One would think a child who is blessed only moments after leaving the hospital would be destined for greatness and safety. The first yes and the second no; at least not in the way we were hoping. We could never conceive of what was to come in his life.

As Christian grew, we grew. Firstborn children teach their parents multiple lessons. Christian was not the best sleeper. He didn’t follow any of the examples of the types of babies they talked about in parenting books. The feeling of failing as a mom plagued me. These feelings not entirely unusual for a first time mom, but confusing nonetheless. One thing that was not confusing, even when I was sleep deprived, was how much I loved him. Again, as the firstborn, every little thing he did made my heart swell ten times. As much as I love my other boys it was different with them because it wasn’t my first time experiencing it.

As his personality developed his mischief did too. This was always a character trait I loved in little boys. As a mom to a mischievous boy it was still adorable but tried my patience!! Now I had to somehow figure out how to refine it without completely making it go away. This did not help my own issue of feeling like I was failing as a mom. When you have a child who does not conform to how others think he or she should behave it can be mortifying. Others make it known by looks, words and glances that your child is behaving poorly. There have been many times I witnessed this in a store and offered words of comfort to the parent instead of the opposite. As much as we love our children, it doesn’t ever feel great to be judged negatively by others.

Christian was not only mischievous but he was a biter! Oh yes he wanted to help me experience it all in his six short years of life. At a mommy and me class he bit a little boy on the back. The mother was not happy but seeing as this was her fourth child, I am sure she had encountered a similar situation before. Her dirty looks and unkind words said otherwise. We made it through. Christian eventually received Occupational Therapy during his preschool years. It definitely helped. Oddly enough I got a call from his therapist the second week she was supposed to see him. She had to cancel because she lost her son suddenly. Heartbreaking. Christian continued on with another wonderful therapist and they were able to make headway with some of his behaviors.

Christian’s larger than life personality was never able to be truly tamed. I wouldn’t have wanted it to be. There were times I wished he would tone it down just a little. He definitely did a lot of living in his short time on Earth. I always say he did everything 100%. All his mischief and love and passion and hugs and smiles and tantrums were at level 100! I’m not sure how we were chosen to be his parents. It’s something we are forever grateful for.

Tomorrow will mark his fifth birthday in heaven. No one should have to celebrate the day their child was born without their child here. We are not alone in this, unfortunately. Tuesday will mark his fifth Christmas in heaven. He is sure to be leading some giant celebration up there! His party in heaven will be mirrored in the smiles, joy and excitement on the faces of my children and nieces as they celebrate the magic of Christmas. It will help to buoy my mood but it will not take the pain away. The longing will remain for the best Christmas gift I ever received. Love to heaven…

Ramblings and Gifts

It’s that time of year again when the air is filled with the magic of the holidays… and the sadness for some. I’m not alone in my struggles and I do not wish to put a damper on anyone who is not feeling sadness. However, I know that there are millions of other people out there struggling as well. Some for the same reason, some not. I don’t have any words of wisdom today. More a rambling of thoughts.

This was an exceptionally tough week. My cousin, Tonia, would have turned 50. It had me reflecting on her and a trip all of the females in my family took when she turned 40. The first thing that comes to mind are the laughs we all shared. We had a great time. It was a beautiful tribute to what the holidays represent to me – enjoying time with those you love. Tonia bought each of us an ornament to commemorate the trip. It will be bittersweet, as it is every Christmas, to place that ornament on my tree.

Last week was also an emotional week. My youngest son turned six. All of the “firsts” he is experiencing as a six year old were Christian’s “lasts”. To use a very intellectual term blah. Each time I think about that the tears spring to my eyes. He seems so little and yet Christian seemed so big when he was six. I found the list he wrote to Santa that year. Immediately my memory sparked. My bright, brown eyed boy wishing for the magic of Christmas to be bestowed upon him. His heart so young and pure. The excitement of the season buzzing all around. This year as his brothers write their Christmas lists, search for the elf and decorate the tree, Christian watches from above.

Grief is a spiral and sometimes it spirals back to an intensity level that can only be sustained for a short amount of time. When this happens I retreat back to survival mode. One of the most important things I did early on, in survival mode, was find one positive thing in each day. Yesterday while preparing lunches for my boys and running around, completing daily morning tasks, they were playing a game. It was a beautiful sight. They were playing and laughing. No one was whining or crying. Whoever was losing was not lamenting over it. They were enjoying their time together. It was a gift. It could have easily been missed by me in my frenzy. I’m sure sometimes I do overlook these moments. Yesterday I didn’t and it made my day. Wishing you all these beautiful gifts of the season and all year through. Love to heaven…

Unconditional Love

Thanksgiving and the holidays are a time for reflection. We remember special days of the past. We look forward to future days to come. My memories are peppered with holidays from my youth, filled with magic. I strive to create the same feeling for my children.

I want them to feel excitement, warmth and the abundance of love shared with family and friends. At the same time I want them to learn how to give warmth and love. It’s important for them to know how to express these emotions.

It’s also important for them to know how to give to those who are not as fortunate to experience an abundance of warmth and love. They have the compassion and strength to help create this for some people. My boys need to know that this is part of their calling. I believe we all have this compassion and strength within us. For my children, given the sadness they know, it’s even more important. They must know that there are people who experience tragedies even worse than what they have gone through. They also must know that there are people who are more fortunate.

Christian continues to teach and guide us through our lives, as individuals and family. He wants and needs us to spread love, compassion and kindness. My boys know that I love them always and forever. It is unconditional acceptance and love. If I can teach them to spread this type of love, I believe they will make a marked difference in this world. Love to heaven…

Quick Thought: Humor Is A Lifesaver

We just got the call here in New York that today is a snow day. I couldn’t resist writing a little something to go with this humorous meme. Give me an hour or two after my kids are awake and my disposition might not be as light! For now though everyone is still sleeping in their own beds. That means no one is smushed so close up against me that I have to get out and walk to the other side of the bed so I don’t fall out! That means no one is rubbing my earlobe. That means creepy baby’s shell of a leg is not sprawled across my face – don’t ask. That means no one has peed on me overnight. That means I have glorious time to myself! Sure it’s way earlier than I want it to be but these may be the only moments I get to myself!

These moments, these times when they cuddle with me in bed, and use me as their body pillow, will be something I miss. I know I will. It’s just hard to miss something when it is part of a regular routine. I can remember with Christian being so paranoid when I got frustrated with him because I wasn’t enjoying him enough. How many times do people say,

“You will miss these days.”

Each and every time I heard that or thought that, I became stressed. That stress caused me to be even more short tempered. In the end that reminder may not be the best. Keeping the idea that I will miss this someday in the back of my head seems a much better option for me than dwelling on it.

  • It’s easy to think about how much I will miss this time when my kids are grown. For the most part I am successful at staying present and enjoying my children. Even before losing Christian I feel that this was my approach to parenting. However, after hearing the “poopy song” 56 times in an hour my excitement about being present dims. Then comes the nerf to the butt. Throw in a little fighting and I am looking to lock myself in the bathroom!
  • It goes without saying that every parent has been there. It also goes without saying that we all love these little antagonizers more than anything. It took me a long time after losing Christian to be okay with these feelings. My heart was plagued with such pain. I would give anything to get him back, even at his toughest moments. A friend of mine taught me the power of the word “and”. This changed a lot for me.
  • I can be a grieving mother who would do anything to get her son back AND still be a person who gets frustrated with her living children. In no way does this mean I don’t love them more than anything. It just means I am a human.

  • The love I have for my children is unmeasurable. I will miss when my boys don’t cuddle with me. Hearing “mommy” in their little voices melts me every time, unless they are whining or screaming. There is so much to be missed but it makes it so hard to enjoy if we think that way.
  • Parenting is hard. Sometimes it makes your heart swell a hundred times. Other times it makes you feel like sticking a fork in your eye. Such is life. Humor will get us through those moments that make us want to pick up the fork. One thing I have learned is that humor heals. If it weren’t for the nerf to the butt what would we miss in twenty years?
  • Today parents of children waking up to find out that school is closed, find humor. When you have refereed the 73rd fight and can’t take it anymore, find something humorous. When you have dressed and undressed them for snow for the tenth time, when you have cleaned pee off the floor for the thousandth time, find humor. If you can’t find that, find wine! Both will get us through. Sending good vibes and hopes for humor to all of you today! Love to heaven…