Pay It Forward

I’m a day late this week because it has been a week of many things. Some of you who read this blog know that in January my husband and got word that our non profit foundation Love From Heaven – Christian Martinisi Memorial Fund Inc was approved!!

This Sunday is the first fundraiser. We are not changing the world with our little foundation but we are bringing help, relief and joy to people who need it. In the spirit of Christian’s legacy we are trying to be a “Rainbow in somebody else’s cloud”.

The mission of Love From Heaven is to provide resources, support and hope to families who experience unexpected child loss. We also memorialize Christian’s love of learning with a scholarship program.

We were, and are, beyond fortunate to be surrounded by people who did all of this for us. It is time for us to pay it forward.

Each day there is a positivity and light around us. Some days we need to search harder than others for it. It is there.

It can be as simple as a stranger’s smile to as grand as a community joining together to build a Memorial playground. Let’s keep it going by contributing in any way we can.

My family has seen what we hope to be our darkest days. It helps us to appreciate the tiniest bit of light. It also inspires us to create light, just as our community did for us.

If you have a minute check out the website for Love From Heaven or visit us on Instagram @lovefromheaveninc. And as always love to Heaven…

Mother’s Day Musings

The instant I received news that I was carrying a child my life changed forever. Almost every decision was made with baby in mind. Our family was set to grow by one. As nervous as I was in every way, I was sure that it would be an amazing change.

Fast forward nine months to the morning of Christian’s birth. It was not planned so I had no idea just how much my life was about to change that night. That morning I was relaxed, stretched out on my couch reading a magazine article about a family with a newborn. It was probably the last uninterrupted magazine article I read!

Christian was born four minutes shy of 6 am. It was indicative of his waking time once out of the womb, actually that was him sleeping in! I can clearly recall the fear that filled my body when they wheeled him into the room and I realized I was his mother. The amount of immediate responsibility that occupied my heart frightened me. How would I take care of this tiny, perfect being? I was unprepared!

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He and I would learn about life alongside each other. I analyzed his every move. Was I mothering him right or wrong? How did I know if I was making the right decisions? My mom was there to guide me but ultimately I was his mother!

This was a tortured time in my life. I read as many books as I could and yet I never felt like I knew what I was doing. First off I couldn’t get my son to sleep! Of course, I assumed it was something I was doing. Now I look back and wonder if he knew? Did his little soul know that we had limited time together?

Here I was with the most precious gift in the world. All I wanted was to give him the best. It was so important for me to make all the right decisions. I couldn’t let him down. Now I know all that truly mattered was that he was taken care of and felt loved. I am sure people tried to tell me that at the time but as a neurotic first time mother I couldn’t get past the idea that I was going to “mess him up.”

As much as I wanted to protect this little being, I was unable to. Control was illusive. Fortunately Christian taught me that just in the nature of his personality. He loved to be mischievous and daring, in many ways. He taught me that I had to let him be, otherwise I would crush his spirit. This was a gift he gave to me and to my living children.

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This is tame for my boys!!

All three of my boys have climbed, jumped off of, and attempted many stunts that have made my heart leap into my throat. It is part of who they are. It almost became even more important after losing Christian that they see that they can, and should, take risks. Sometimes they tell me I worry too much and want them to be too careful. Sometimes that is probably true.

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Our last Mother’s Day all together. When I look at this picture it speaks the language of love and each one of my boy’s personalities.

Just like with Christian I want to give them the best of me. I still fear “messing them up.” In my heart though, I know that they feel loved in every cell of their being. I will continue to make mistakes. Obviously I cannot control and protect them from everything but I can love them through everything. That includes my mistakes and their mistakes. I hope that all the mothers reading this today give themselves the gift of self love. Love your child as best you can and know in your heart that you are doing the best you can for them. Love never dies. Love to Heaven…

 

The Weight of Grief

Sometimes the weight of grief is unknown until a moment, day or event passes. This is how it was for me this past weekend when my middle child made his First Communion.

In the weeks leading up to the event, daily life had me running to baseball practices and games, working the book fair, submitting my writing to different sites, gaining some new opportunities (stay tuned for more about that!) and even a trip for myself to Urgent Care. It left me little time to mull over the latest milestone that was about to be reached. This was probably a blessing.

Lately I have been referring to the “beginning” or “early days” in my writing. As I wrote in last week’s post, my journey is forever changing and evolving. When I look back to the early days, immediately after losing Christian, and even the years that followed, and compare it to now I can see true evolution. In the past if I had been preoccupied leading up to a big event, the aftermath would have left me completely depleted. Over time, however, I have processed and experienced the pain that goes along with my living sons experiencing things their brother never got to.

Anthony’s Communion was beautiful and we are so very proud of him. It was also the quintessential depiction of joy and pain existing together in the moment. Our family was seated in the very first pew. As I watched my eight year old enter the church, hands folded dutifully as prayer hands should be, pride rushed through me. Love poured out of me and a smile graced my face.

As the mass continued on and mention was made of those who are deceased, the weight of grief fell. It fell hard. The storm of sadness moved in and instantly fat tears began to drop. For a little while it made the sunshine of joy invisible. The sun remained there, it just became clouded over by the storm that came rolling through. And such is life.

Anthony’s big moment approached and he was excited to receive his First Communion. In his eyes the warmth of the sun reached me. The storm had passed. The day continued and all had a good time.

The weight of the grief I had been carrying around, presumably for the weeks leading up to the event. was only truly felt on the day after it. I awoke with a surprising amount of relief. This was a revelation for me. The physical, emotional and mental relief so evident that I could not ignore it.

It brought me back to just a year ago. Last June Christian’s friends moved up from Elementary School to Middle School. In the weeks leading up to the ceremony, he was remembered and honored in different ways. At the actual moving up ceremony a single red balloon was attached to an empty chair in memory of my beautiful child. This is a gift that all grieving mothers wish to be given.

Again we see the juxtaposition of joy and pain existing together. My gratitude is greater than words for all of these thoughtful gestures. They also were a painful reminder of the fact that Christian is not moving up to Middle School. With or without him being honored the deep sadness would have been present. It warms my heart that his classmates, their parents and the school, made remembering him a priority.

Life is not easy. We tell our children that when they are young. There is no easy fix and we are all due some pain in our lives. We cannot avoid these storms. We must learn how to get through them. The weight of grief has lifted for now. It will be back. I am sure of it. I will get through it again. I am also sure of that. Love to Heaven…

Am I Grieving Wrong?

“It sounds like you are entering the acceptance phase”, my therapist says. “Acceptance doesn’t mean you like it, just that you are beginning to accept the reality that he is gone”. I flinch. Acceptance hadn’t occurred to me.

Am I really there? Isn’t it too soon? I must be a terrible mother. What kind of person loses her son and can accept it?

Oh, hello paradox of truth. We meet again. Every life is filled with joy and pain existing alongside of each other. In my life, joyful moments usher in happiness, smiles and laughter. This NEVER happens without pain. It doesn’t mean I feel the pain at the same time. It just means the shadow of pain is lurking in the darkness. We all live this.

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Photo by Pixabay on Pexels.com

 

 

Grieving a child truly makes us examine the marbling of joy and pain. Early in the grieving journey the felt guilt is immense at the smallest inkling of joy. Feeling a smile on my face caused stabbing emotions of remorse to pierce my heart. The judgmental inner voice would scream, “How can you be smiling? Your son is in Heaven!!”

The first time going to dinner with friends after losing Christian was a night filled with wine, good food and laughter. It felt like a violation as a grieving mother.

The first girls’ weekend away from my living children began with an incident that produced such raucous laughter tears were streaming down my face. How could I feel that much freedom and happiness?

The first belly laugh my husband and I shared around friends felt liberating and constricting all at the same time. Laughing was a part of who I was, and who we were, before we experienced the traumatic cleaver of tragedy. We couldn’t possibly be grieving correctly.

Positive emotions did not feel acceptable for a long time. No one ever verbalized that they thought I was “grieving wrong”, but I imagined that was how some people were looking at me.

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Then the fog of grief lifted just the tiniest bit, and I mean the tiniest bit. When I looked around it seemed the more joy that infiltrated my life, the more signs I was able to recognize from Christian. Those who know us best and love us most seemed to take tiny breaths of relief. No one ever questioned whether we were still broken, that was a given. It just brought them joy to see us experience slivers of happiness.

Anne Lamott, author of Almost Everything: Notes on Hope, says, “But all truth really is a paradox, and this turns out to be a reason for hope. If you arrive at a place in life that is miserable, it will change, and something else about it will also be true.” The truth is I did lose my son and it continues to be the worst pain I have ever felt, but that intense pain did not last forever. Residual pain remains and sometimes the intense pain returns, inhabiting my heart and body. It never lasts forever. Grieving parents can only learn this truth over time.

Each time the intense pain returns and recedes, it grows hope. It is this hope that helps us to move through our lives until we see our children again. Hope is alive and tangible. In my life I have found hope through my children, husband, family (especially my nieces), friends, life lessons, signs from my angel, meetings with people I know he put on my path and many other things. Hope is not always there, but it is ever present.

Trusting in hope helps me to move forward. In the beginning I frequently asked “Why did this happen?” That is an answer I’m not sure I will ever have. Time and experience has taught me that this question robs me of my hope. Lamott says, “‘Why?” is rarely a useful question in the hope business.” I agree with her on this. It won’t bring Christian back. It will only bring on self judgment.

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Reflecting on acceptance after my therapist used this word in our session has been enlightening for me. Though I have not made peace with it yet, I can understand that my way of acceptance includes an and. I accept that Christian is no longer a living, breathing being and I don’t like it. On any given day the words that follow the and in the sentence may change. As I am writing today it changes to, “I am angry about it”.

Acceptance is walking in the footsteps of hope. As much I want to, I cannot go back and change the past. If I fight the present, or the movement toward acceptance, it threatens my connection to Christian. Living in the “why?” and “should have been” mindsets only make room for pain. So for now I will continue to grieve as I do. Sometimes this will include questioning my ability to do it correctly. When fear of being healed of my grief surfaces I am always made humble by my tears. Moving toward acceptance is just another recognition of joy existing alongside pain. Love to Heaven…

Broken Hearted But Not Broken

This afternoon as I glanced down at my phone for a quick reprieve I was deeply saddened to discover the news about Notre Dame. I inhaled a sharp breath causing my mother to ask anxiously, “What happened?” When I told her the news she was heartbroken but relieved. Bad news has known to be the worst news in our family.

She and I began to commiserate about the news of the fire, consider what might have been the cause and thank God that at least no one was hurt. Our conversation was cut short as we were snapped back to reality. “They’re back”, she said. The “they” meant my dad, my boys and my niece.

“They” had returned home from picking up my niece at school. I opened the car door and inquired about how her day had been. As though in tune with the world, she lamented over a troubling encounter with one of her friends in Kindergarten. We discussed it for a moment. At the age of six, injustices are easily washed away by the promise of sugar. My mother and I had hidden one hundred fifty Easter eggs for the children to find. When I explained that the “Easter bunny” left a note for them and hid eggs while we were all out, the excitement registered on their faces and in their voices.

The screeches were surely heard around the block. As they sprinted to the front door, I was nearly knocked over. Immediately the exclamations of discoveries could be heard. I brushed past my mom, anxious to see them on the hunt. She held my youngest niece in her arms and said, “I want to hear more of that report when they are done”. Confusion clouded my brain. It took me a minute to realize she meant the fire that had encapsulated Notre Dame.

Just a few moments prior I had been immersed in world history in the making. Today will be noted in History books for years to come. And still life carries on even when history is in the making. It brought me back to the days that will forever be in my own personal history book.

Time stopped today as flames licked a historic cathedral that will now forever be changed. The world carried on around it. Time stopped the day Christian gained his wings, forever changing our lives. The world carried on around us. The concept never ceases to amaze me. Things happen all day, every day, everywhere that are major monumental, events. Sometimes they affect a family and community. Sometimes they affect the world. Either way, the world carries on around it.

Photo Credit: Thibault Camus/AP

This is one of the most shocking aspects of child loss. It boggled my mind that the sun was still rising and setting, kids were starting a new school year, the leaves were changing. All of the things and events that had been natural occurrences at one time in my life were still going on around me, but my life had turned so unnatural.

The strangest realizations had me questioning my sanity. One day I realized I would never again take care of Christian when he was sick. He would never need to be nursed back to health with a proper dose of ginger ale after the stomach bug. No longer would I wait with baited breath as the thermometer read the temperature of his body. Obviously these are more menial tasks of motherhood but if he was able to be sick it meant his body was alive. It meant I could help “make things better”. My chance at that was through.

It was the daily routines that were most unnatural. Bath time with only 2 boys. The world carried on. Only 2 boys to coerce into brushing their teeth. Only 2 boys to corral into bed. Only 2 boys to kiss goodnight. Only 2 boys to imagine growing older. Only 2 boys to imagine carrying out all the hopes and dreams I had for them. And the world carried on. So unnatural, so changed.

Hopes and dreams were lost today, just as they were when Christian became an angel. Yet, children went to school and egg hunts were had. A historical structure survived a trauma but will forever be changed. It will be rebuilt, undoubtedly, but never the same. The rich historical background to include the fire that damaged it but did not decimate it. The world will carry on, just as it always does. Tomorrow the sun will come up. History will be changed and time will go on. Just as we are forever changed. We are not broken, just broken hearted. Love to heaven…

Gratitude Done My Way

Sometimes living each day can feel like a whole lot of work. There are mornings I wake up and have a silent conversation with myself about all that lies ahead in the coming hours. The voice inside my head chides me whenever I even think this way. My firstborn had less than seven years to live, less than seven years of mornings to wake up and be excited about. With each day I should be overflowing with gratitude just to have the chance to make memories with the ones I love.

Did you hear that should in there? “Shoulds” indicate judgment on my part and never bring me anywhere positive. I am beyond grateful to be making memories and be an active part of my loved one’s lives. Yesterday, as I was entering Target, both children were holding my hands in the parking lot. I felt so much gratitude to have their little hands inside mine. I do focus on the little/big things. When I break it down and simplify it like that, I feel a little less selfish and ungrateful.

Give thanks for a little and you will find a lot. ~ Hausa Proverb

Gratitude is a buzz word right now. As a grieving mother, I feel like I need to be even more grateful as a way to honor Christian and all the days he never got to live. In my quest to be as grateful as possible, I decided to start a gratitude journal. There are an abundance of journals for sale for this exact purpose.

Putting my gratitude on paper proved to be harder than I expected. First it meant that I needed to have quiet time at night. That only happens after the boys are asleep. Then it meant that I had to a) be awake after they fell asleep and b) have the energy to actually write down my gratitude list. Unfortunately these things are a rarity. The added pressure I was putting on myself about needing to be extra grateful, because I know how precious life is, was only making things worse.

Things were not going as I wanted or planned them to. Furthermore I was failing at honoring my angel. Wow. That was a tough pill to swallow. If I were hearing this from a friend in my position I would sit her down and have a strong talk with her about how she needed to go easier on herself! My message would encompass the truth that she has to be gentle with herself, celebrate her strengths and be flexible in areas she doesn’t feel strong in.

Despite my empty gratitude journal lying on my nightstand as a constant reminder of my flaw, a new routine developed organically. Each night before my son/s enter into slumber we have quiet cuddle time. It is one of my favorite times of the day. As I laid there with my youngest son one night, I started reflecting on all the positive aspects of the day. It became a habit. Now it is a particularly beautiful part of the bedtime routine for me. It requires no extra items other than my memories and inner voice.

As grieving parents we often carry the added weight of having to revel in the positives. We know just how fleeting a life can be. We know just how quickly an irreversible change can take place, leaving your heart forever cracked. It does put more pressure on us. The truth is we will never constantly be happy or grateful. We are still humans. Yes, we know one of the worst pains on Earth. Yes, we will forever honor our children. Yes, we will celebrate joys. There will be times, however, when maybe we should be more grateful and we are not. That is okay. As a grieving mom this is just something else that I need to accept. I honor Christian in numerous ways. The guilt will have to take a back seat for now. Love to heaven…

 

Unraveling Grief

Recently I stumbled upon a quote that burrowed into my heart the moment I laid eyes upon it. Unexpectedly it greeted me on my computer screen as if it were my own personal description of how child loss affected my family.

“It is as if each family were a huge ball of yarn; each member a different colored strand woven and wound together. When one member dies, the entire ball must be unwound, the strand removed, and the ball then needs to be put back together and rewound. However, the ball can never be recreated as it was before.”

Jean Galica, Licensed Marriage and Family Therapist is the brilliant author of the quote.

This analogy is so beautiful. It immediately conjures up visions of how my boys enjoy playing with yarn. It usually involves one of them holding a ball of yarn as he frantically runs and jumps around the room, unraveling the yarn ball, causing chaos and mess. Then the other child takes a different color and repeats. At the end we are left with criss crossed colors of yarn, spread across a large space, some of it tangled and knotted. To make use of the yarn we must untangle and roll as much as we can back into a ball. More often than not there are pieces that need to be cut out because they are so badly knotted.

As the shock of child loss sets in and family members enter into survival mode, they often spread apart. Although they are still connected, and their lives are tangled together, each person needs to process loss on his or her own. Even as a mother of two living children, after losing Christian, there was some distance between myself and my living children. The tight interwoven nature of our former relationship had slackened. I was no longer able to love them without the imminent fear of losing them looming over me.

My husband also suffered from the anxiety and fear of losing them. He and I dealt with it very differently. While I found comfort in talking openly about every aspect of child loss, he had a much different experience. He and I remained connected and leaned on one other as we were both attempted to process our own grief. The individual balls of yarn that made up our lives were completely unraveled, tangled, knotted and lacking color.

It wasn’t just our immediate family that was deeply affected. Our family unit is tight knit and my children are blessed to have close relationships with their grandparents, aunt, uncle and cousins. In those early days a few conflicts arose from the tensions of knots. Everyone was sleep deprived, saddened, confused, angry and mainly using all their energy to process the tragedy that struck our lives.

Over time as each person began to process in their own way, the yarn smoothed out. We were able to work through the knots. Slowly each color of yarn became more vibrant again. Each strand became straighter. The connection was never lost. It was just a mystery for some time as to how we would be wound together again in our ball of love.

Slowly, slowly as time went on we wound around the children. They brought vibrancy and joy back to our lives. Our extended family ball of yarn is interwoven differently but still as tight as ever.

Today the ball of yarn that is my immediate family is so very different than the one that started out as the five of us. The ball that contained five individual colors, wound together, was only in existence for less than two years. Nothing will ever heal that part of my wound. Less than two years to have your family together on Earth is devastating.

The devastation we have experienced plays a large part in how our ball was rewound. Galica says a strand of yarn is removed after you lose a child. This is true. It does not disappear however, the fibers of that one strand are merely divided to become part of all of the other strands. No longer an individual but an energy, a spirit, an Angel. Our familial ball of yarn, immediate and extended, will never be put together again in the same way. The beauty lies in all we have learned from tragedy, adding dimension to each single strand of color. Christian will forever be a part of each of us in ways he could never be before. Love to heaven…