Pay It Forward

I’m a day late this week because it has been a week of many things. Some of you who read this blog know that in January my husband and got word that our non profit foundation Love From Heaven – Christian Martinisi Memorial Fund Inc was approved!!

This Sunday is the first fundraiser. We are not changing the world with our little foundation but we are bringing help, relief and joy to people who need it. In the spirit of Christian’s legacy we are trying to be a “Rainbow in somebody else’s cloud”.

The mission of Love From Heaven is to provide resources, support and hope to families who experience unexpected child loss. We also memorialize Christian’s love of learning with a scholarship program.

We were, and are, beyond fortunate to be surrounded by people who did all of this for us. It is time for us to pay it forward.

Each day there is a positivity and light around us. Some days we need to search harder than others for it. It is there.

It can be as simple as a stranger’s smile to as grand as a community joining together to build a Memorial playground. Let’s keep it going by contributing in any way we can.

My family has seen what we hope to be our darkest days. It helps us to appreciate the tiniest bit of light. It also inspires us to create light, just as our community did for us.

If you have a minute check out the website for Love From Heaven or visit us on Instagram @lovefromheaveninc. And as always love to Heaven…

Mother’s Day Musings

The instant I received news that I was carrying a child my life changed forever. Almost every decision was made with baby in mind. Our family was set to grow by one. As nervous as I was in every way, I was sure that it would be an amazing change.

Fast forward nine months to the morning of Christian’s birth. It was not planned so I had no idea just how much my life was about to change that night. That morning I was relaxed, stretched out on my couch reading a magazine article about a family with a newborn. It was probably the last uninterrupted magazine article I read!

Christian was born four minutes shy of 6 am. It was indicative of his waking time once out of the womb, actually that was him sleeping in! I can clearly recall the fear that filled my body when they wheeled him into the room and I realized I was his mother. The amount of immediate responsibility that occupied my heart frightened me. How would I take care of this tiny, perfect being? I was unprepared!

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He and I would learn about life alongside each other. I analyzed his every move. Was I mothering him right or wrong? How did I know if I was making the right decisions? My mom was there to guide me but ultimately I was his mother!

This was a tortured time in my life. I read as many books as I could and yet I never felt like I knew what I was doing. First off I couldn’t get my son to sleep! Of course, I assumed it was something I was doing. Now I look back and wonder if he knew? Did his little soul know that we had limited time together?

Here I was with the most precious gift in the world. All I wanted was to give him the best. It was so important for me to make all the right decisions. I couldn’t let him down. Now I know all that truly mattered was that he was taken care of and felt loved. I am sure people tried to tell me that at the time but as a neurotic first time mother I couldn’t get past the idea that I was going to “mess him up.”

As much as I wanted to protect this little being, I was unable to. Control was illusive. Fortunately Christian taught me that just in the nature of his personality. He loved to be mischievous and daring, in many ways. He taught me that I had to let him be, otherwise I would crush his spirit. This was a gift he gave to me and to my living children.

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This is tame for my boys!!

All three of my boys have climbed, jumped off of, and attempted many stunts that have made my heart leap into my throat. It is part of who they are. It almost became even more important after losing Christian that they see that they can, and should, take risks. Sometimes they tell me I worry too much and want them to be too careful. Sometimes that is probably true.

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Our last Mother’s Day all together. When I look at this picture it speaks the language of love and each one of my boy’s personalities.

Just like with Christian I want to give them the best of me. I still fear “messing them up.” In my heart though, I know that they feel loved in every cell of their being. I will continue to make mistakes. Obviously I cannot control and protect them from everything but I can love them through everything. That includes my mistakes and their mistakes. I hope that all the mothers reading this today give themselves the gift of self love. Love your child as best you can and know in your heart that you are doing the best you can for them. Love never dies. Love to Heaven…

 

The Weight of Grief

Sometimes the weight of grief is unknown until a moment, day or event passes. This is how it was for me this past weekend when my middle child made his First Communion.

In the weeks leading up to the event, daily life had me running to baseball practices and games, working the book fair, submitting my writing to different sites, gaining some new opportunities (stay tuned for more about that!) and even a trip for myself to Urgent Care. It left me little time to mull over the latest milestone that was about to be reached. This was probably a blessing.

Lately I have been referring to the “beginning” or “early days” in my writing. As I wrote in last week’s post, my journey is forever changing and evolving. When I look back to the early days, immediately after losing Christian, and even the years that followed, and compare it to now I can see true evolution. In the past if I had been preoccupied leading up to a big event, the aftermath would have left me completely depleted. Over time, however, I have processed and experienced the pain that goes along with my living sons experiencing things their brother never got to.

Anthony’s Communion was beautiful and we are so very proud of him. It was also the quintessential depiction of joy and pain existing together in the moment. Our family was seated in the very first pew. As I watched my eight year old enter the church, hands folded dutifully as prayer hands should be, pride rushed through me. Love poured out of me and a smile graced my face.

As the mass continued on and mention was made of those who are deceased, the weight of grief fell. It fell hard. The storm of sadness moved in and instantly fat tears began to drop. For a little while it made the sunshine of joy invisible. The sun remained there, it just became clouded over by the storm that came rolling through. And such is life.

Anthony’s big moment approached and he was excited to receive his First Communion. In his eyes the warmth of the sun reached me. The storm had passed. The day continued and all had a good time.

The weight of the grief I had been carrying around, presumably for the weeks leading up to the event. was only truly felt on the day after it. I awoke with a surprising amount of relief. This was a revelation for me. The physical, emotional and mental relief so evident that I could not ignore it.

It brought me back to just a year ago. Last June Christian’s friends moved up from Elementary School to Middle School. In the weeks leading up to the ceremony, he was remembered and honored in different ways. At the actual moving up ceremony a single red balloon was attached to an empty chair in memory of my beautiful child. This is a gift that all grieving mothers wish to be given.

Again we see the juxtaposition of joy and pain existing together. My gratitude is greater than words for all of these thoughtful gestures. They also were a painful reminder of the fact that Christian is not moving up to Middle School. With or without him being honored the deep sadness would have been present. It warms my heart that his classmates, their parents and the school, made remembering him a priority.

Life is not easy. We tell our children that when they are young. There is no easy fix and we are all due some pain in our lives. We cannot avoid these storms. We must learn how to get through them. The weight of grief has lifted for now. It will be back. I am sure of it. I will get through it again. I am also sure of that. Love to Heaven…

Am I Grieving Wrong?

“It sounds like you are entering the acceptance phase”, my therapist says. “Acceptance doesn’t mean you like it, just that you are beginning to accept the reality that he is gone”. I flinch. Acceptance hadn’t occurred to me.

Am I really there? Isn’t it too soon? I must be a terrible mother. What kind of person loses her son and can accept it?

Oh, hello paradox of truth. We meet again. Every life is filled with joy and pain existing alongside of each other. In my life, joyful moments usher in happiness, smiles and laughter. This NEVER happens without pain. It doesn’t mean I feel the pain at the same time. It just means the shadow of pain is lurking in the darkness. We all live this.

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Grieving a child truly makes us examine the marbling of joy and pain. Early in the grieving journey the felt guilt is immense at the smallest inkling of joy. Feeling a smile on my face caused stabbing emotions of remorse to pierce my heart. The judgmental inner voice would scream, “How can you be smiling? Your son is in Heaven!!”

The first time going to dinner with friends after losing Christian was a night filled with wine, good food and laughter. It felt like a violation as a grieving mother.

The first girls’ weekend away from my living children began with an incident that produced such raucous laughter tears were streaming down my face. How could I feel that much freedom and happiness?

The first belly laugh my husband and I shared around friends felt liberating and constricting all at the same time. Laughing was a part of who I was, and who we were, before we experienced the traumatic cleaver of tragedy. We couldn’t possibly be grieving correctly.

Positive emotions did not feel acceptable for a long time. No one ever verbalized that they thought I was “grieving wrong”, but I imagined that was how some people were looking at me.

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Then the fog of grief lifted just the tiniest bit, and I mean the tiniest bit. When I looked around it seemed the more joy that infiltrated my life, the more signs I was able to recognize from Christian. Those who know us best and love us most seemed to take tiny breaths of relief. No one ever questioned whether we were still broken, that was a given. It just brought them joy to see us experience slivers of happiness.

Anne Lamott, author of Almost Everything: Notes on Hope, says, “But all truth really is a paradox, and this turns out to be a reason for hope. If you arrive at a place in life that is miserable, it will change, and something else about it will also be true.” The truth is I did lose my son and it continues to be the worst pain I have ever felt, but that intense pain did not last forever. Residual pain remains and sometimes the intense pain returns, inhabiting my heart and body. It never lasts forever. Grieving parents can only learn this truth over time.

Each time the intense pain returns and recedes, it grows hope. It is this hope that helps us to move through our lives until we see our children again. Hope is alive and tangible. In my life I have found hope through my children, husband, family (especially my nieces), friends, life lessons, signs from my angel, meetings with people I know he put on my path and many other things. Hope is not always there, but it is ever present.

Trusting in hope helps me to move forward. In the beginning I frequently asked “Why did this happen?” That is an answer I’m not sure I will ever have. Time and experience has taught me that this question robs me of my hope. Lamott says, “‘Why?” is rarely a useful question in the hope business.” I agree with her on this. It won’t bring Christian back. It will only bring on self judgment.

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Reflecting on acceptance after my therapist used this word in our session has been enlightening for me. Though I have not made peace with it yet, I can understand that my way of acceptance includes an and. I accept that Christian is no longer a living, breathing being and I don’t like it. On any given day the words that follow the and in the sentence may change. As I am writing today it changes to, “I am angry about it”.

Acceptance is walking in the footsteps of hope. As much I want to, I cannot go back and change the past. If I fight the present, or the movement toward acceptance, it threatens my connection to Christian. Living in the “why?” and “should have been” mindsets only make room for pain. So for now I will continue to grieve as I do. Sometimes this will include questioning my ability to do it correctly. When fear of being healed of my grief surfaces I am always made humble by my tears. Moving toward acceptance is just another recognition of joy existing alongside pain. Love to Heaven…

Spiritual Dreams

Recently I read a book that confirmed my beliefs about dreams and comforted me. As a frequent dreamer, Spiritual Lighthouse, The Dream Diaries of Ann Marie Ruby, caught my eye immediately. During the passage of time that has unfolded since losing Christian, my spiritual journey has been integral to my healing. Dreams have been a large part of this.

From the start of the book I felt a kinship with the author. She talks about nature remaining a constant over time, while things change all around it. This couldn’t be more true. It doesn’t matter how long or dark the night is the sun will always rise the next day. The waves will continue to crash and the mountains will continue to stand. Even when your whole world is crashing down around you, nature is a constant.

Although the topics of the dreams Ruby shares vary, she circles back to two main ideas. One being that there is a “spiritual lighthouse” guiding us throughout life. She also stresses the importance of faith and hope. Some of her dreams reflect day to day life and others relate to worldly and historical events. All proven to be accurate when she researched them.

Interspersed throughout the book are spiritual prayers, adding another layer of dimension allowing the reader to relate it to his or her own present life and circumstances.
Ruby’s dream journal is a beautiful collection of one woman’s journey through her sleep. It proves that dreams are more than just visions in our head. They have definitive meaning. This book helped to clarify what I’ve felt all along. Messages are delivered while we are in a dreaming state of slumber. Thank you Ann Marie for your beautiful depiction of this!

Helping Children Through Grief

In my last post I wrote about how to help a grieving family. It was focused more on the parents and the family as a whole. This week I thought I would provide some insight on how to help children who are grieving. My children were one and three when we lost Christian. Unfortunately we knew the loss would impact Anthony at his age. Many people were of the opinion that Nicky would not be affected as much since he was not yet two years old. As time goes on I am certain that this is not true.

The task of raising children who grow up with a sibling in Heaven is no easy feat. At their ages there were many questions about death and Heaven since they had no point of reference. When children are a little bit older they understand the concept of death more but Heaven is still elusive, even to adults.

The American Academy of Pediatrics says,

“Everyone, including children, must understand four basic concepts about death to grieve fully and come to terms with what has happened. Teens, and even adults, may have a full and rational understanding of death, yet still struggle to accept these basic concepts when faced with the death of a loved one.”

The four concepts we must understand are that death is irreversible, all life functions end at the time of death, everything that is alive dies and there are physical reasons for death.

  • Recently in our community a beautiful little girl gained her wings after 13 short years here on Earth. I do not know the family personally but I do know what occurs in the wake of losing a child, for the family and community. I do not, by any means claim to be a therapist, just a mother who is raising her children after trauma and loss.
  • While questions and answers will differ based on the age of grieving children, some things will not. The absolute most important piece of advice is to keep the door of communication open with a grieving child. Provide him or her with a safe environment in which they can openly discuss the person who has gone ahead to Heaven. Allow the grieving child to share his or her emotions.
  • I can’t speak to what this exactly looks like in a teenager. I would imagine just as with younger children, grief and confusion will be disguised behind other emotions. We had outbursts, uncommon behaviors, difficulty sleeping, regression and even survivor guilt with our children. Almost five years later we see anxiety and anger sometimes. We see sensitivity to certain triggers, not always obvious ones. For example my children still play “dead”, which haunts me, but is normal, age appropriate behavior for them.

    This brings me to my next point. As adults it can be so hard not to put our own anxieties on our children. The grieving child can be even more sensitive to this. The anxiety that arises within me when my boys “play dead” is because of my knowledge, experience and relationship to the word and all that I have lost. This is not how my children see it. They do not yet have the life knowledge, experience and understanding that I have. There is no need to add any more layers of sadness or anxiety onto their own grief.

    If, however, your child is experiencing anxiety about the finality of his or her own life or someone else’s, this is normal after an untimely death. Abigail Marks, PhD, a clinical psychologist who specializes in grief says, “See if you can find out more about their specific concerns and show that you take their feelings seriously. When kids feel reassured and understood, anxiety can begin to shrink”. After losing Christian we were advised to be very honest with our children. We even had a “standard family answer” so that we were all consistent about death. Again, this was age appropriate but we said, “Christian is in Heaven now but he will always be in our hearts and our memories”. We explained that him being in our hearts was the love we have for him and will always have for him. The book, The Invisible String, reinforces this idea. It is geared towards younger children, explaining that we are connected to all of the people we love with an invisible string, even those who are in Heaven.

    My husband and I are firm believers that Christian’s energy is still all around us. He was an extremely persistent child his whole life with us and he continues to exert his persistence from Heaven. We are grateful for this. Through odd occurrences, hearts, pennies and dreams, he has proven that he will always be with us. It will never be the way we hoped, but our relationship does continue. It was important that our children understand that too. They have a continuous relationship with their oldest brother. He often shows himself on important days, regular days, almost every day. They even dream of him. He is a part of this family and always will be. Every day we speak his name at one point or another. They talk about him to their friends and they carry on his memory, just as we do.

    We have been very careful not to let Christian overshadow our living children. We take our cues from them. They have said things like, “Why is everything about Christian?” or “I don’t want to talk about him right now”. That’s okay. It’s normal. We know that means for a little while after they express these feelings we need to monitor how much we speak about Christian, allowing them to bring him up in conversation. Again, we cannot let our anxiety of him being forgotten override the health of our family.

    While we have learned a lot of this on our own as grief is individual to each person and family, we have also worked with mental health professionals since the start of our grief journey. We are blessed with some of the most amazing people in our lives. We thank Christian for this. We believe he put these “angels on Earth” in our path. Their guidance and professional opinion definitely makes a world of difference.

    If you are sensing that your child has some emotions inside but is hesitant to let them out there are a few things I suggest you can do with him or her:

    Get them moving – Here in New York Spring has sprung! Go for a hike, a walk, play a game of basketball, have a game of catch, even ask them to help you complete a physical task – anything to get them moving. Allowing them to choose and giving them control over the activity will encourage them to open up. My son took Tae Kwon Do for two years and it helped him immensely. We even put a punching bag in the basement as a means for him to work out his emotions physically. 

    “It turns out that exercise can be an important coping tool to deal with grief and loss, whether it’s the death of a loved one or the end of a relationship.”

     

    Give them a journal If you have a child who is maybe a little more introverted or does not share feelings as easily, journaling can be a great option. Journaling does not have to be limited to the written word. Art journaling is a great way to process emotions.

    “According to grief experts, the task of reconstructing your personal self-narrative is critical in the healing process. A grief journal will provide you with a venue for expression without fear of being judged”.

    Encourage music in their lives – Listening, playing and dancing to music are all amazing ways to process emotions. When we listen to certain music, play certain instruments such as the drums or dance around, we are stimulating both sides of the brain. 

    Bilateral stimulation… [which] has been demonstrated extensively in studies to create a greater connection between your mind and your body.”

    Provide them with creative experiences – Ask if they would like to enroll in an art class, take a painting class with them, provide them with art journal prompts (Pinterest has tons!) All of this helps them to get their feelings out and work through them. Emphasize that it is not the end product that is most meaningful but the process.

    “When you are unable to express yourself, but you desire emotional release, making art may help you to do it”.

    Grief is a powerful emotion. Loss, especially when a death is untimely, can be very disturbing. Be patient with yourself as you process these emotions alongside your child. Parents will undoubtedly have an increase in their own fears and strong emotions. It is healthy for your child to see you working through this. While I do not advise voicing your fears surrounding how fragile life is, as your child has learned this firsthand, I do encourage you to share your emotions, memories and age appropriate thoughts. For example you may say, “I was thinking about your friend Christian today. Remember how much fun we had the day we all went to the waterpark?” This may spark a conversation with your child, allowing their feelings to seep out. You may also say, “I went to visit Christian’s family today while you were in school. I feel sad whenever I see them.” These are simple statements but ones that your child can relate to. If they see you modelling your own feelings and that your emotions are there too, they will be more accepting of their own. Grief can be very strong and sometimes that can be scary to a child. Through the parent voicing his or her own emotions, it normalizes them.

    It feels harsh and unfair that some children are exposed to death at such early ages. We have no control over what happens in our lives, but we can control our reactions. Helping our children learn coping skills when encountering large emotions is a lesson that they will value for the rest of their lives. It is horrible to be learned through the death of a family member or friend but it is something that will always be useful.

    How To Talk About Death To Your Child –

    https://www.purewow.com/family/how-to-explain-death-to-a-child?amphtml=true

    Dealing with untimely loss is difficult. As a parent children turn to us for answers we don’t have. There are many times I have said to my children, “I don’t have an answer to your question. It is something I wonder about too”. It’s okay to do that. Parents, be gentle on yourself and do your best. If you feel that you are having trouble answering questions and handling a loss, seek help. Professionals don’t have all the answers either but they have more experience than we do dealing with traumatic situations.

    Above all, open lines of communication are the most important. If that means you have to play a video game with your child to get him to talk – do it! Just let him or her know you are here to listen. Sometimes that is all they want. Listening can be harder than you think. Innately, we want to fix our child if he or she is hurting. There are some things we cannot fix. There are some journeys each person has to take on their own. Grief is one of them. We can walk alongside and provide support, but not fix it. Love to heaven…

    Gratitude Done My Way

    Sometimes living each day can feel like a whole lot of work. There are mornings I wake up and have a silent conversation with myself about all that lies ahead in the coming hours. The voice inside my head chides me whenever I even think this way. My firstborn had less than seven years to live, less than seven years of mornings to wake up and be excited about. With each day I should be overflowing with gratitude just to have the chance to make memories with the ones I love.

    Did you hear that should in there? “Shoulds” indicate judgment on my part and never bring me anywhere positive. I am beyond grateful to be making memories and be an active part of my loved one’s lives. Yesterday, as I was entering Target, both children were holding my hands in the parking lot. I felt so much gratitude to have their little hands inside mine. I do focus on the little/big things. When I break it down and simplify it like that, I feel a little less selfish and ungrateful.

    Give thanks for a little and you will find a lot. ~ Hausa Proverb

    Gratitude is a buzz word right now. As a grieving mother, I feel like I need to be even more grateful as a way to honor Christian and all the days he never got to live. In my quest to be as grateful as possible, I decided to start a gratitude journal. There are an abundance of journals for sale for this exact purpose.

    Putting my gratitude on paper proved to be harder than I expected. First it meant that I needed to have quiet time at night. That only happens after the boys are asleep. Then it meant that I had to a) be awake after they fell asleep and b) have the energy to actually write down my gratitude list. Unfortunately these things are a rarity. The added pressure I was putting on myself about needing to be extra grateful, because I know how precious life is, was only making things worse.

    Things were not going as I wanted or planned them to. Furthermore I was failing at honoring my angel. Wow. That was a tough pill to swallow. If I were hearing this from a friend in my position I would sit her down and have a strong talk with her about how she needed to go easier on herself! My message would encompass the truth that she has to be gentle with herself, celebrate her strengths and be flexible in areas she doesn’t feel strong in.

    Despite my empty gratitude journal lying on my nightstand as a constant reminder of my flaw, a new routine developed organically. Each night before my son/s enter into slumber we have quiet cuddle time. It is one of my favorite times of the day. As I laid there with my youngest son one night, I started reflecting on all the positive aspects of the day. It became a habit. Now it is a particularly beautiful part of the bedtime routine for me. It requires no extra items other than my memories and inner voice.

    As grieving parents we often carry the added weight of having to revel in the positives. We know just how fleeting a life can be. We know just how quickly an irreversible change can take place, leaving your heart forever cracked. It does put more pressure on us. The truth is we will never constantly be happy or grateful. We are still humans. Yes, we know one of the worst pains on Earth. Yes, we will forever honor our children. Yes, we will celebrate joys. There will be times, however, when maybe we should be more grateful and we are not. That is okay. As a grieving mom this is just something else that I need to accept. I honor Christian in numerous ways. The guilt will have to take a back seat for now. Love to heaven…