Author Archives: christiansredballoon

My name is Cara Martinisi. I am mother to three boys and a wife to my high school sweetheart. Up until three and a half years ago, I lived a mainly charmed life. I married the first boy I fell in love with, had three easy pregnancies and three healthy boys. Family and friends were plentiful and amazing. There were bumps in the road, like with anyone else. For the most part, though, I had lived my life with everything falling neatly into place. This all changed after living 35 years in this manner. On July 3rd 2014, our house got struck by lightening. It was a scary experience, which resulted in a fire. Our entire family escaped the fire safely. Our home needed to be gutted and rebuilt, but we realized just how blessed we were to all be safe and sound. Fast forward exactly eight weeks later, to the end of the summer, August 28th. Our entire world was changed in a matter of minutes. We were living in a rental home, where a freak accident occurred. The supporting pole in the garage was not secure. It fell on my six year old son, Christian. My then three year old son and I witnessed the entire scene. This has irrevocably changed who I am as a person in every way. I am now a bereaved mother. It may be one of my titles, but not my identity. My family will never be the same. We are left to move on, while we are not whole. The trauma, shock and pain resonates daily, in one way or another. My mission, now, is to help others who have joined this undesirable club. My mission is to carry on my son’s message, which was kindness. My mission, now, is to make a new normal. I hope you get some inspiration from my posts, whether you are a bereaved parent or not. Grieving a child teaches you lessons that one can never learn in any other way. As always, love to heaven...

Helping Children Through Grief

In my last post I wrote about how to help a grieving family. It was focused more on the parents and the family as a whole. This week I thought I would provide some insight on how to help children who are grieving. My children were one and three when we lost Christian. Unfortunately we knew the loss would impact Anthony at his age. Many people were of the opinion that Nicky would not be affected as much since he was not yet two years old. As time goes on I am certain that this is not true.

The task of raising children who grow up with a sibling in Heaven is no easy feat. At their ages there were many questions about death and Heaven since they had no point of reference. When children are a little bit older they understand the concept of death more but Heaven is still elusive, even to adults.

The American Academy of Pediatrics says,

“Everyone, including children, must understand four basic concepts about death to grieve fully and come to terms with what has happened. Teens, and even adults, may have a full and rational understanding of death, yet still struggle to accept these basic concepts when faced with the death of a loved one.”

The four concepts we must understand are that death is irreversible, all life functions end at the time of death, everything that is alive dies and there are physical reasons for death.

Recently in our community a beautiful little girl gained her wings after 13 short years here on Earth. I do not know the family personally but I do know what occurs in the wake of losing a child, for the family and community. I do not, by any means claim to be a therapist, just a mother who is raising her children after trauma and loss.

While questions and answers will differ based on the age of grieving children, some things will not. The absolute most important piece of advice is to keep the door of communication open with a grieving child. Provide him or her with a safe environment in which they can openly discuss the person who has gone ahead to Heaven. Allow the grieving child to share his or her emotions.

I can’t speak to what this exactly looks like in a teenager. I would imagine just as with younger children, grief and confusion will be disguised behind other emotions. We had outbursts, uncommon behaviors, difficulty sleeping, regression and even survivor guilt with our children. Almost five years later we see anxiety and anger sometimes. We see sensitivity to certain triggers, not always obvious ones. For example my children still play “dead”, which haunts me, but is normal, age appropriate behavior for them.

This brings me to my next point. As adults it can be so hard not to put our own anxieties on our children. The grieving child can be even more sensitive to this. The anxiety that arises within me when my boys “play dead” is because of my knowledge, experience and relationship to the word and all that I have lost. This is not how my children see it. They do not yet have the life knowledge, experience and understanding that I have. There is no need to add any more layers of sadness or anxiety onto their own grief.

If, however, your child is experiencing anxiety about the finality of his or her own life or someone else’s, this is normal after an untimely death. Abigail Marks, PhD, a clinical psychologist who specializes in grief says, “See if you can find out more about their specific concerns and show that you take their feelings seriously. When kids feel reassured and understood, anxiety can begin to shrink”. After losing Christian we were advised to be very honest with our children. We even had a “standard family answer” so that we were all consistent about death. Again, this was age appropriate but we said, “Christian is in Heaven now but he will always be in our hearts and our memories”. We explained that him being in our hearts was the love we have for him and will always have for him. The book, The Invisible String, reinforces this idea. It is geared towards younger children, explaining that we are connected to all of the people we love with an invisible string, even those who are in Heaven.

My husband and I are firm believers that Christian’s energy is still all around us. He was an extremely persistent child his whole life with us and he continues to exert his persistence from Heaven. We are grateful for this. Through odd occurrences, hearts, pennies and dreams, he has proven that he will always be with us. It will never be the way we hoped, but our relationship does continue. It was important that our children understand that too. They have a continuous relationship with their oldest brother. He often shows himself on important days, regular days, almost every day. They even dream of him. He is a part of this family and always will be. Every day we speak his name at one point or another. They talk about him to their friends and they carry on his memory, just as we do.

We have been very careful not to let Christian overshadow our living children. We take our cues from them. They have said things like, “Why is everything about Christian?” or “I don’t want to talk about him right now”. That’s okay. It’s normal. We know that means for a little while after they express these feelings we need to monitor how much we speak about Christian, allowing them to bring him up in conversation. Again, we cannot let our anxiety of him being forgotten override the health of our family.

While we have learned a lot of this on our own as grief is individual to each person and family, we have also worked with mental health professionals since the start of our grief journey. We are blessed with some of the most amazing people in our lives. We thank Christian for this. We believe he put these “angels on Earth” in our path. Their guidance and professional opinion definitely makes a world of difference.

If you are sensing that your child has some emotions inside but is hesitant to let them out there are a few things I suggest you can do with him or her:

Get them moving – Here in New York Spring has sprung! Go for a hike, a walk, play a game of basketball, have a game of catch, even ask them to help you complete a physical task – anything to get them moving. Allowing them to choose and giving them control over the activity will encourage them to open up. My son took Tae Kwon Do for two years and it helped him immensely. We even put a punching bag in the basement as a means for him to work out his emotions physically.

“It turns out that exercise can be an important coping tool to deal with grief and loss, whether it’s the death of a loved one or the end of a relationship.”

Give them a journal – If you have a child who is maybe a little more introverted or does not share feelings as easily, journaling can be a great option. Journaling does not have to be limited to the written word. Art journaling is a great way to process emotions.

“According to grief experts, the task of reconstructing your personal self-narrative is critical in the healing process. A grief journal will provide you with a venue for expression without fear of being judged”.

Encourage music in their lives – Listening, playing and dancing to music are all amazing ways to process emotions. When we listen to certain music, play certain instruments such as the drums or dance around, we are stimulating both sides of the brain.

“Bilateral stimulation… [which] has been demonstrated extensively in studies to create a greater connection between your mind and your body.”

Provide them with creative experiences – Ask if they would like to enroll in an art class, take a painting class with them, provide them with art journal prompts (Pinterest has tons!) All of this helps them to get their feelings out and work through them. Emphasize that it is not the end product that is most meaningful but the process.

“When you are unable to express yourself, but you desire emotional release, making art may help you to do it”.

Grief is a powerful emotion. Loss, especially when a death is untimely, can be very disturbing. Be patient with yourself as you process these emotions alongside your child. Parents will undoubtedly have an increase in their own fears and strong emotions. It is healthy for your child to see you working through this. While I do not advise voicing your fears surrounding how fragile life is, as your child has learned this firsthand, I do encourage you to share your emotions, memories and age appropriate thoughts. For example you may say, “I was thinking about your friend Christian today. Remember how much fun we had the day we all went to the waterpark?” This may spark a conversation with your child, allowing their feelings to seep out. You may also say, “I went to visit Christian’s family today while you were in school. I feel sad whenever I see them.” These are simple statements but ones that your child can relate to. If they see you modelling your own feelings and that your emotions are there too, they will be more accepting of their own. Grief can be very strong and sometimes that can be scary to a child. Through the parent voicing his or her own emotions, it normalizes them.

It feels harsh and unfair that some children are exposed to death at such early ages. We have no control over what happens in our lives, but we can control our reactions. Helping our children learn coping skills when encountering large emotions is a lesson that they will value for the rest of their lives. It is horrible to be learned through the death of a family member or friend but it is something that will always be useful.

How To Talk About Death To Your Child –

https://www.purewow.com/family/how-to-explain-death-to-a-child?amphtml=true

Dealing with untimely loss is difficult. As a parent children turn to us for answers we don’t have. There are many times I have said to my children, “I don’t have an answer to your question. It is something I wonder about too”. It’s okay to do that. Parents, be gentle on yourself and do your best. If you feel that you are having trouble answering questions and handling a loss, seek help. Professionals don’t have all the answers either but they have more experience than we do dealing with traumatic situations.

Above all, open lines of communication are the most important. If that means you have to play a video game with your child to get him to talk – do it! Just let him or her know you are here to listen. Sometimes that is all they want. Listening can be harder than you think. Innately, we want to fix our child if he or she is hurting. There are some things we cannot fix. There are some journeys each person has to take on their own. Grief is one of them. We can walk alongside and provide support, but not fix it. Love to heaven…

How To Support A Grieving Family

What do I say to a mother or father who has lost their child? What if I say the wrong thing? What if I make them cry? How about the siblings of the angel? What if death is a topic of conversation when they are around? What if it has a negative effect on them? How can I help the family?

These are all valid, well meaning questions stemming from a place of love. Death is an emotional topic and hard to speak to. When it involves an untimely death it becomes increasingly intense. I can say that there were very few people who said something that really bothered me when Christian passed away. Even those who did, were not saying it maliciously.

I am going to give you my piece of advice that answers any and all questions surrounding an especially emotional death, such as child loss. Are you ready? It’s quite profound.

Just be there for the family in any way you feel you can do that.

If that means you attend the wake, funeral, cook for them, call them every day, text them every day, stop by and check in, take care of their children, give them a wine basket, make a donation to their angel’s fund, go for a walk with them, take them to a yoga class or simply just listen to them talk and cry, you are doing the best thing you can for them. A comprehensive list of ideas can be found here. Some grieving parents will need many people around them and some will need to isolate a little. As much as everyone wishes they could take the family’s pain away, we all know that is not possible. Just be there for them.

Inherently this seems to come easier to the women. Women tend to be more open with emotions and both the grieving mother and friend are able to be more expressive. It can be more difficult with the grieving father. Please don’t forget about him. His pain is just as intense. More often than not he will grieve differently than his wife. An article on the website Love To Know states, “Men often express their grief physically. A grieving father may throw himself into work or projects around the house, or he may take up a hobby to keep himself occupied and avoid dealing with his emotions.” In my own experience I found this to be very true. While I communicated like a rushing river of emotion in every way, my husband tended to be more like the ground after an earthquake. The cracks were deep and full of pain but there was no spouting emotion.

In addition, societal views tend to portray men as the spouse who needs to be “strong”. NO ONE should be expected to be strong after losing a child. Unfortunately I have witnessed people giving my husband this exact advice. It makes me want to scream. As a mom of boys it is something that I am even more conscious of. Given the extent of the trauma my children have experienced at such early ages, it has been a focus to help them learn how to freely express their emotions.

When friends, family and community members see grieving parents in such desperate pain sometimes they rush to provide them with books, resources and information about groups for grieving parents. This can be so overwhelming. I remember receiving information from others almost immediately. Again, it was so thoughtful and completely appreciated. In the beginning I wasn’t able to process or utilize any of it. It pretty much sat in a box for the first six months. The focus of each day was merely based on survival. Sometimes that meant getting through minute by minute. As time went on I did look through all of the things that were given or sent to me. Some of them are resources I still use and some never worked for me. Either way it was the thought that counted.

If you are an immediate family member of the grieving parent you will also have an especially difficult road to travel. As you navigate your own loss you are expected to support the grieving parent. I have seen my family become quite protective over me and my grief. Sometimes things that are said in my presence strike a nerve with my family members as they worry about my reaction to them. When I think about having to watch one of my children grieve his child, while I grieve my grandchild, my head explodes. My parents and in-laws have watched myself and my husband suffer immensely. That road is laden with sadness, guilt and what if’s for them.

As tight knit and close as my own family is, there are days when I can tell that they are “holding back”. They may not sound like themselves or look like themselves. More often than not they will tell me that they don’t share their bad days with me because if I am having a good day they don’t want to upset me. This sometimes happens between my husband and myself as well.

Grief is undoubtedly a tricky road to navigate. Grieving the loss of a child is even trickier. It forever changes everything. Grieving parents will need their family, friends and community to support them for a long time, if not forever. The biggest fear after losing a child is that no one will remember him or her. Parents also fear that after time passes he or she will become less relevant, their names will be spoken less and their absence will become the norm. If you really are committed to helping a grieving family, don’t ever let this happen. Continue to speak the child’s name. Continue to tell stories. Continue to attend memorials and life celebrations. Continue to let the grieving parent know you are thinking of them. Above all, just be there for them. Love to heaven…

Gratitude Done My Way

Sometimes living each day can feel like a whole lot of work. There are mornings I wake up and have a silent conversation with myself about all that lies ahead in the coming hours. The voice inside my head chides me whenever I even think this way. My firstborn had less than seven years to live, less than seven years of mornings to wake up and be excited about. With each day I should be overflowing with gratitude just to have the chance to make memories with the ones I love.

Did you hear that should in there? “Shoulds” indicate judgment on my part and never bring me anywhere positive. I am beyond grateful to be making memories and be an active part of my loved one’s lives. Yesterday, as I was entering Target, both children were holding my hands in the parking lot. I felt so much gratitude to have their little hands inside mine. I do focus on the little/big things. When I break it down and simplify it like that, I feel a little less selfish and ungrateful.

Give thanks for a little and you will find a lot. ~ Hausa Proverb

Gratitude is a buzz word right now. As a grieving mother, I feel like I need to be even more grateful as a way to honor Christian and all the days he never got to live. In my quest to be as grateful as possible, I decided to start a gratitude journal. There are an abundance of journals for sale for this exact purpose.

Putting my gratitude on paper proved to be harder than I expected. First it meant that I needed to have quiet time at night. That only happens after the boys are asleep. Then it meant that I had to a) be awake after they fell asleep and b) have the energy to actually write down my gratitude list. Unfortunately these things are a rarity. The added pressure I was putting on myself about needing to be extra grateful, because I know how precious life is, was only making things worse.

Things were not going as I wanted or planned them to. Furthermore I was failing at honoring my angel. Wow. That was a tough pill to swallow. If I were hearing this from a friend in my position I would sit her down and have a strong talk with her about how she needed to go easier on herself! My message would encompass the truth that she has to be gentle with herself, celebrate her strengths and be flexible in areas she doesn’t feel strong in.

Despite my empty gratitude journal lying on my nightstand as a constant reminder of my flaw, a new routine developed organically. Each night before my son/s enter into slumber we have quiet cuddle time. It is one of my favorite times of the day. As I laid there with my youngest son one night, I started reflecting on all the positive aspects of the day. It became a habit. Now it is a particularly beautiful part of the bedtime routine for me. It requires no extra items other than my memories and inner voice.

As grieving parents we often carry the added weight of having to revel in the positives. We know just how fleeting a life can be. We know just how quickly an irreversible change can take place, leaving your heart forever cracked. It does put more pressure on us. The truth is we will never constantly be happy or grateful. We are still humans. Yes, we know one of the worst pains on Earth. Yes, we will forever honor our children. Yes, we will celebrate joys. There will be times, however, when maybe we should be more grateful and we are not. That is okay. As a grieving mom this is just something else that I need to accept. I honor Christian in numerous ways. The guilt will have to take a back seat for now. Love to heaven…

Debut Chapbook Is A Bridge To Hope

There is solidarity in grief, specifically between parents who have lost children. To have experienced this deep tragedy is to understand the sorrow that consumes another’s heart. In my travels over the years I have met many grieving parents. Although it is not a title that defines us it is a piece of our identity.

Most recently I met Amanda Russell, a fellow mother who suffered this devastating loss. To meet her today one would not know the difficulties she has experienced in the past. Every time I see her she has a smile on her face and exudes a warm energy. She is pensive and bright. Her inviting smile is framed by a head of bouncy curls. Even her curls seem to reflect her approach to life.

It is hard to imagine Amanda in a place where her emotions were so dark and blinding. Yet these searching, dark emotions took hold of her and served as creative motivation behind the collection of poems in her debut chapbook, BARREN YEARS. When Amanda was 22 and newly married, she became pregnant with twins. In a devastating turn of events, during her second trimester, she miscarried. The grief that consumed her after the miscarriage led to her expression through poetry.

Amanda was no stranger to writing prior to her miscarriage. She says, “I have always turned to creative writing when I need to make sense of something”. She goes on to say, “The miscarriage was hard for me to talk about out loud because I would cry or not find the words I wanted, but paper allows drafts”. Through her writing she was able to find solace. The creation of something new allowed her to process the events and devastation of what she lost.

Each person grieves differently. No two people are the exact same. Some of us use the same coping mechanisms and walk the same bridges to hope, but our timing may be different. Some of us are open to sharing feelings but some of us have trouble. Grief and death, especially untimely deaths, are uncomfortable topics for many people. Amanda’s description of not being able to find the words to speak but being able to find the words through the drafting process is beautiful.

It is extremely difficult to put emotions into words on a first pass. I often say to grieving parents, “there are no words”. Is that ironic being that a large part of my life centers around words? It is challenging to enunciate exactly how much emotion I feel for other grieving parents. Furthermore, how I may choose to describe my emotions may not reflect their feelings at that time. Amanda’s poetry, however, seems to grasp the many varied sentiments surrounding child loss.

While we all differ in how we process our loss, there is a common thread of sadness. On the other side is the search for hope. The collection of poems in Barren Years reflect both sides of loss.

In “Stones Amid Pines” Amanda expresses how shedding tears for her children helps her to feel whole again. These words speak the same language of my heart.

A kind of stone in my own right , I sit

at the grave of my children

and weep so thoroughly

that when I walk away

I am once again whole.

When grief is new and fresh, or when it circles back around, the need for tears to fall is innate. It feels as though the tears that wet our face prove the loss we have suffered. The loss so deep needs to be physically seen and sometimes tears are the only way that can happen. It does not logically make sense but sometimes it is necessary. The expulsion of emotion helps to temporarily purge the deep rooted sadness that has taken up a place in our hearts. It is sometimes the only thing that helps to make us feel whole again.

“Stones Amid Pines” also speaks to time and its softening nature in relation to grief. Never does it change our experiences but rather our relationship to them. Just as surrounding environments continue on, so do the living. As the poem begins she writes about her children being buried where a future church is to be erected. After seven years of time has passed she makes a deferential observation.

Time has done

her great mother-work again.

She has her own way of soothing.

I glance up at the church, birthed out of the hill itself

with castle-like glory

and filled with music,

the intersection of many lives

creating communion.

The glaring contrast of her children’s graves at the bottom of the hill, while a church has been “birthed out of the hill itself” reminds us of how life continues on even when our hearts are not able to beat properly. It is our choice whether or not we carry on, while carrying our angels with us. We have the choice to create new memories and use our own creativity to foster hope. The other choice is to dwell in the place of sadness, allowing the darkness that has seeped into our hearts to forever close our eyes, close our minds and close our future.

The poem succinctly closes by paying homage to grief, sadness and Amanda’s unborn children. She honors “letting it all go once again”. As a reader it feels as though “Stones Amid Pines” is a true reflection of her being able to process grief and realizing that she will forever carry this in her heart. In her words I recognize her understanding that time will continue to lead her back to this sorrowful state periodically.

Writing is so clearly a beautiful form of creative therapy for Amanda. In an interview on the blog, Space Between, she reveals that she utilized other forms of creativity to aid in her healing. “I realized I needed something to take care of, so my dear friend, Linda, taught me gardening. Taking care of my plants, together with writing and many long talks with some of my spiritual guides helped me through. It took me a good five years to begin feeling like myself again. ” Her hope and healing through gardening is evident in “Spinach and Broccoli”, another poem from her collection.

New sprouts emerge

with a burst of courage;

having broken through clay,

they begin reaching for the sun.

The metaphorical value of this speaks to my soul. This is how it is as a grieving mother. Hope begins with the smallest thought, the tiniest idea. It sprouts, taking much courage. The significance of the clay symbolizing a common factor I have seen in every grieving parent at the start of their grief journey. It is that belief that happiness and joy will never emerge again. The hopelessness that grieving parents experience impedes their belief that anything will ever make them smile again. Then one day the sun spreads its warmth and joy. Eventually you begin reaching for it again.

Amanda’s collection of poems are clearly very personal creations. Some would be hesitant to share the words of their bare souls. I have a deep admiration for her because she is not one of those people. Her belief is that her words will help others. Grief can be an isolating state to subsist in. Bridging to others through writing has helped Amanda and will help those who read her words. There is healing in connection. Barren Years offers a sense of connection, solidarity and hope.

BARREN YEARS is available for pre-order from Finishing Line Press. You can also check out her website, or follow her on Twitter @poet_russell.

Unraveling Grief

Recently I stumbled upon a quote that burrowed into my heart the moment I laid eyes upon it. Unexpectedly it greeted me on my computer screen as if it were my own personal description of how child loss affected my family.

“It is as if each family were a huge ball of yarn; each member a different colored strand woven and wound together. When one member dies, the entire ball must be unwound, the strand removed, and the ball then needs to be put back together and rewound. However, the ball can never be recreated as it was before.”

Jean Galica, Licensed Marriage and Family Therapist is the brilliant author of the quote.

This analogy is so beautiful. It immediately conjures up visions of how my boys enjoy playing with yarn. It usually involves one of them holding a ball of yarn as he frantically runs and jumps around the room, unraveling the yarn ball, causing chaos and mess. Then the other child takes a different color and repeats. At the end we are left with criss crossed colors of yarn, spread across a large space, some of it tangled and knotted. To make use of the yarn we must untangle and roll as much as we can back into a ball. More often than not there are pieces that need to be cut out because they are so badly knotted.

As the shock of child loss sets in and family members enter into survival mode, they often spread apart. Although they are still connected, and their lives are tangled together, each person needs to process loss on his or her own. Even as a mother of two living children, after losing Christian, there was some distance between myself and my living children. The tight interwoven nature of our former relationship had slackened. I was no longer able to love them without the imminent fear of losing them looming over me.

My husband also suffered from the anxiety and fear of losing them. He and I dealt with it very differently. While I found comfort in talking openly about every aspect of child loss, he had a much different experience. He and I remained connected and leaned on one other as we were both attempted to process our own grief. The individual balls of yarn that made up our lives were completely unraveled, tangled, knotted and lacking color.

It wasn’t just our immediate family that was deeply affected. Our family unit is tight knit and my children are blessed to have close relationships with their grandparents, aunt, uncle and cousins. In those early days a few conflicts arose from the tensions of knots. Everyone was sleep deprived, saddened, confused, angry and mainly using all their energy to process the tragedy that struck our lives.

Over time as each person began to process in their own way, the yarn smoothed out. We were able to work through the knots. Slowly each color of yarn became more vibrant again. Each strand became straighter. The connection was never lost. It was just a mystery for some time as to how we would be wound together again in our ball of love.

Slowly, slowly as time went on we wound around the children. They brought vibrancy and joy back to our lives. Our extended family ball of yarn is interwoven differently but still as tight as ever.

Today the ball of yarn that is my immediate family is so very different than the one that started out as the five of us. The ball that contained five individual colors, wound together, was only in existence for less than two years. Nothing will ever heal that part of my wound. Less than two years to have your family together on Earth is devastating.

The devastation we have experienced plays a large part in how our ball was rewound. Galica says a strand of yarn is removed after you lose a child. This is true. It does not disappear however, the fibers of that one strand are merely divided to become part of all of the other strands. No longer an individual but an energy, a spirit, an Angel. Our familial ball of yarn, immediate and extended, will never be put together again in the same way. The beauty lies in all we have learned from tragedy, adding dimension to each single strand of color. Christian will forever be a part of each of us in ways he could never be before. Love to heaven…

Toolbox of Hope

Yesterday as we prepared for another icy mess in New York I was reminded of a post I wrote last year, Making Our Own Spring. I wrote the post in the midst of a March snowstorm when hope of Spring was blanketed by cold, icy snow.

We are at that point again in the winter when it seems Spring will never bloom. Once again, there are vibrantly colored flowers in my kitchen. The bright fragrance that greets me when I enter my home leads my mind to believe that the weather outside is warmer. If only for a moment I delight in that thought before I am brought back to the reality that ice is on its way. There are so many things in life we cannot control, weather being one of them. Some years winters drag on longer than others. This seems to be one of them. It is how we react to these long, dark periods that shapes our days.

As a bereaved mom, I have had my fair share of long, dark periods, winter or not. The dark has shedded light, out of necessity, on my needs for survival. One of the necessities of my “new normal” is my toolbox of hope.

The agonizing, unending pain of losing a child was so horrifying in the beginning that I had to seek refuge in anything. There was no escaping it. It was the most stifling, terrifying pain I ever experienced. That pain forced me to seek out activities, treatments and friends to renew any bit of hope in my life. Some treatments, like acupuncture, scared me. I tried it anyway and found relief in it. There were even times it helped me to connect with Christian. Other activities were less daunting, like coloring. It had been all the rage but before losing Christian I never really tried coloring as a stress reliever. In my search for anything associated with joy after the tragedy, I tried it and it worked as a calming agent for me before bed.

Some things in the toolbox don’t help the first time or the second time, but they help the third. Some things help for three days straight and then not again for a year. All of them remain in my toolbox of hope though.

Despite the many tools I have gathered and used, I am not immune to feelings of hopelessness filling my soul, clouding out any bit of light. The clouds are filled with lies, ready to burst at the sight of something that threatens to puncture them. When we completely abandon hope, the clouds rain down a deep saturating rain of lies. Our mind believes that the sun will never show itself again and spring will never come. Just as in nature, the truth is lingering there in life waiting to be validated. Sometimes it needs repetitive validation for our own mental health. This may need to happen hourly, sometimes daily, sometimes infrequently. If we hang on to the truth that nature and life is cyclical, we avoid giving the lies of hopelessness power. It’s not a magic answer. It is a continuous effort. It takes willingness and work. The more you practice it though, the longer the distance grows in between periods of hopelessness.

The pain of child loss is no longer inescapable for me like it was in the beginning. It will never leave me. It’s always there but I do get reprieved from it. Time teaches bereaved parents how to live around their pain. Tools teach us how to grow around our pain.

Since January I have been in a bit of a funk. Tools that have been helping me for over a year seem to not be working at this point. Feelings of hopelessness are creeping in. It’s hard to stay determined, hard to stay the course. It feels like I am clawing at an uphill mountain. Not only am I exerting more effort than usual but it its not getting me anywhere. Small things are irritating me. The self judgement is harsh. Turning to my toolbox of hope has helped. There are some tools in there that I haven’t used for years but I am finding them to be helpful again. There are days I don’t have the energy to look at my toolbox of hope. The important thing is that on days when I have the slightest bit of energy, I reach in, pull something out and try it. More often than not just that bit of action procures hope.

Hopelessness ignites a war within ourselves. No one is comfortable in that emotional state. The toolbox of hope are the tools we can use to fight off the enemy. The more we gather, the more power we have over our enemy. The tools also help to make us more resilient. It doesn’t make us immune to hard times, it just helps us fight them. Keep building up your toolboxes of hope! Love to heaven…

Student and Teacher of Grief

Every day there are two little humans who are watching, observing and learning from me. When I look at it day to day that thought can be quite scary, but when I look at the big picture it becomes less overwhelming. There is a span of many days from which they learn. The way I see it is as long they see me get back up after I fall, after I make mistakes, we are okay.

Our family has experienced a devastating tragedy. As I am learning how to carry my own pain and continue living, I am both a student and teacher. Along the way of my own journey I am learning about life, myself and my strength. I am also responsible for teaching my children. With my own thoughts, expectations, beliefs and emotions shaken to the core, it puts me on a shaky ground as a teacher.

Perhaps the teaching of thoughts, expectations, beliefs and emotions is not the important part though. Perhaps it is more important to model the process of discovering what one believes. One thing my children do see is how to persevere and find the good wherever we can. I am unsure if I am teaching them correctly in so many areas but I do know that my husband and I teach them to see the best in everything. I also know we have fostered an eternal connection with their brother. There is no doubt in my mind that there are areas that I am not shining in but all I can do is my best.

Although I use the word “heal” a lot in my writing and speaking, I am very conscious that the definitions provided in dictionaries are not akin to my process. Merriam-Webster Dictionary defines healing as, “to make sound or whole”. Nope. “to make well again: to restore to health”. If we are comparing to the first days after loss, yes. Other than that – no. “to cause (an undesirable condition) to be overcome”. Nope. For me healing is a journey, not a condition. I am carrying on in my life and continuing to live.

Last weekend I learned a new phrase, “post traumatic growth”. This phrase is very apropos to my journey. Everyone goes through difficult periods in their lives. We all have our own versions of trauma. When we are under duress, we are forced to change. Change does not mean that things turn out the way we want them to. It simply means that things change because we cannot stay the same and endure the stress or pain we are living with.

The reason behind change is often the traumatic part. The journey is often the growth part. August will mark five years since we lost Christian. Over those five years I have met many people who have lost children. None of us will ever be the same or whole again. All of us have learned valuable lessons. In life we are continuous learners. It has been challenging to learn while teaching but I suppose this is a facet of parenting no matter the circumstances. Love to heaven…

See You In My Dreams

I dreamt about my beautiful Christian last night. He was so happy, bouncing around the room like a ping pong with his brothers. The specifics of the dream are blurry but I can recall the most important part, at the end. He came over to me, upon my request, and gave me a hug. His skinny arms reached up, wrapped around my neck and squeezed. It only lasted a second, but it was a second of pure bliss.

Dreaming of Christian is not new. It happens less frequently than I would like but at least it happens. My husband rarely dreams of him. Anthony dreams of him sometimes and Nicky said he never does.

There are so many unfair things about losing someone you love. Does it have to be permanent? Why can’t you get a certain number of dreams a week when you can interact with them? Going from daily interaction to nothing seems cruel. Of course we get signs, and they are beautiful, but I am left wanting more!

I like to think of my dream last night as an early Valentine’s Day gift for me. Hugs and kisses are the best gifts! Young children are so generous with hugs and kisses. They become stingier as they get older. Even with my living children I am always saying, “Come over here and give me a hug and kiss!” Sometimes they do it begrudgingly. Other times they just pretend it is begrudgingly.

My favorite hugs are the ones my boys give to each other spontaneously. If they were a little more savvy they would know that they could ask me for anything they wanted in that moment and get it!

In my last post I wrote about some people that I met at a LiveOnNY workshop over the weekend. As I watched three sisters who lost their only brother my heart truly ached for them. It evoked emotions in me that I knew were there but buried for survival purposes.

My familial dream of three boys growing up together began the day I found out Nicky was a boy. Brotherly bonds are not to be underrated. Immediately images of three boys laughing, loving, playing and fighting together emerged. Then my thoughts expanded to graduations and weddings. I lamented the fact that I would never be mother of the bride. At the same time I fell in love with the idea that I would be the most important female in their lives until marriage. So many hopes and dreams sketched out. My favorite ones were always based on their brotherly bond. Thank goodness Anthony and Nicky still have this but it pains me to know that the brother who was going to “guide” them – okay be their leader in mischief – is no longer here to do that.

Today, the snow is falling in New York again. We are a few days shy of Valentine’s Day – the holiday of love. I found this beautiful project on Pinterest that I am going to use as a way for my boys to record memories of Christian.

Using my emotional barometer I will judge whether we can make it all about Christian or if we should include all three boys. If they seem to feel any bit over shadowed by Christian’s memory then I will include memories for all three boys. Either way it is a beautiful dedication to brotherly love.

My life has not turned out the way I had hoped. There will forever be the question, “what would it be like if you were here?” We will never know. We must relish in the memory of the times with all three of our boys and continue to create new memories with our two living boys. Love to heaven…

Hope Is In Every Step

Hope. We all need it to survive. After Christian passed away it was completely unfathomable to me that I would ever feel it again. Yet I have and I do. That is not to say that it doesn’t waver, because it does.

This particular topic is on my heart tonight as I’ve just returned home from an amazing workshop at LiveOnNY. LiveOnNY is a non profit organization that works to procure organ donation in the Greater New York area. The beautiful thing about this organization is that they are actively working with the donor families after their loss.

When Christian passed away I knew immediately that his wishes would be to help someone else in need. After all, our body only houses our soul. Without hesitation we answered “yes” when they asked if we wanted his organs to be donated.

Right there we chose hope. There was no chance of our little boy coming back to us but there was a chance that his organs could offer hope for someone else, and they did.

In the moment when they asked us about organ donation I didn’t feel any bit of hope. I didn’t feel it after we said yes. I didn’t feel it for a very long time. We are four and a half years walking this journey and there are still days when hope eludes me. Most days though it is somewhere in my soul.

How did I get to a place where I feel any semblance of hope? Sometimes even I wonder. I know I have an abundance of love and support that surrounds me. That certainly helps. I also know that I made a conscious decision to carry on. It is something that I work on constantly. Some days it feels fairly simple. Other days it requires my every effort, every minute of the day. I feel like I am walking through sludge.

Self care, a topic of today’s workshop, is a large part of me being able to find hope again. From the very start I tried anything that I thought might offer the tiniest bit. That included acupuncture, therapy, walks with friends, yoga, art, exercising, writing, attending grief groups and other activities that are not coming to mind right now. Some worked and some didn’t. Some I still utilize as self care tools today. Most importantly my willingness to try things helped me to find a way to survive this unthinkable loss. The key to hope is finding what works for you.At today’s workshop I met many amazing people. For some the loss was extremely new and raw. It took such courage for them to be there. Their desperation to find any sort of relief written all over their faces and evidenced in their tears. My heart broke for them. It is not so long ago that I was in their place. Even in all I tried I don’t think I had the courage to attend a workshop like this so soon after our loss.

I saw myself in these people. One woman, a writer, unsure if she will ever write again. Another family of a mother and three daughters who lost their only brother, all clearly devastated. I was them. I am them. Time has just taught me how to integrate the pain into my life today. Sadness and joy live alongside each other in my world, as it will for them.

That’s hope. Newly grieving people feel devoid of it, but they don’t realize that they are already building it. Every step one takes to find relief from the blinding pain allows hope to filter in. They may not feel it today, tomorrow or next week. It takes time to chip away a big enough space to see the hope shining through. It will. Each time one wakes up and makes it through another day. That’s hope. Pepper it with a few healthy attempts to relieve the pain and you are building hope. It doesn’t feel like it, but you are.

Thank you to the amazing staff at LiveOnNY for the workshop you led. As one participant said it so beautifully to them, “You should feel great about yourselves today, knowing you are making a difference in lives”. They were my dose of hope today. Love to heaven…

Expectations and Truth

Yesterday was one of those days. You know what I am talking about. A day where just about all you can handle is sitting on the couch and watching movies. My boys went into school at 10:30 and were home by 1:30, due to the weather. Thank God they made it home safely. While I had hoped for a longer amount of childless time, I am so grateful that the school district made a smart decision.

It definitely interrupted my movie watching though. Between being asked for snacks, arguing over every little thing and then being told that they really didn’t want the dinner I had cooked I was ready to explode. Then when I said, “I need a break!” It was met with my six year old’s answer, “That’s because you hate us.” Aaah, yes, pile on the mom guilt.

Being a mom is hard. Being a parent is hard. Being an adult is hard. Anyone who is reading this can probably agree with at least one or all of those statements! How can it be that some days you feel on top of the world like you have it all under control and the next day you are drowning? Some of this is certainly due to my circumstances but I do not believe that only bereaved parents feel this way. I know that is not true.

Recently I was having a conversation with a friend about how a few nights ago the bedtime routine went splendidly. So much so that Anthony, my eight year old, thanked Nicky for the hug he gave him in school that day. Then Nicky thanked Anthony for being included in a game with his friends. It ended with them both saying, “I love you” to each other. Not sure who those kids were but before becoming a parent I actually thought that there would be way more days like that.

When we examine what our beliefs or expectations are compared to reality, accepting reality can sometimes be so hard. In the case of raising children, you learn pretty quickly that there is a huge divide between what you expected and the truth. I will never forget a time when Christian threw a screaming fit in an outdoor mall and I had to carry him out. It was humbling. That’s for sure. At the time I felt like the biggest failure as a parent. I was still stuck in the pre-child mindset that my child would never do that. I can actually hear some of you laughing out loud because you know what I mean!

The me of today knows that the exact opposite was true. I was doing a great job as a parent that day. Christian was doing a great job of being a kid. We were both doing exactly what we were supposed to be doing. (Don’t even get me started on the supposed to’s.) Nonetheless, it took time, experience and multiple children to learn this.

Expectations are the measure by which we define where we want to be. If we set them too low, we are not accomplishing what we are capable of. If they are too high we experience failure. There are some areas of my life where I am in tune with where my expectations need to be. Other areas I am still learning. The saying, “Patience is a virtue” is a mantra that I repeat quite often. It takes patience, time and experience to first learn where to set your expectations, then how to reach them, then to actually reach them. It is certainly not a linear process. We must experience some days on top of the world and others when we are drowning.

Today I am right in between. I’m not exactly on top and I’m not exactly drowning. After all that madness yesterday I couldn’t bear to even deal with the bedtime routine. I collapsed into bed and asked my husband to put both boys to sleep. Even though he had a long day dealing with the snow, important meetings at work and coming home to a crazy wife who was still the pajamas he left her in, he did. Thank God. Right before Nicky went to bed he came to me and gave me a huge hug and kissed me tenderly on the top of my head. Just like that I melted. It was a kind of nourishment for the next day, a kind of payment for parenting being so difficult. Never in my imagination could I have known just how hard it would be to parent children. I also could have never imagined just how much I would love these children. Love to heaven…