The Best Christmas Gift

It’s been a while since I have written. I haven’t felt like myself lately. The holidays this year have heightened my grief and anxiety. It’s not this intense every year. Thank God.

Tomorrow is Christian’s birthday. He would have been 11. The usual questions about what he would look like? Act like? Be asking for as birthday and Christmas gifts? continuously flood my brain and heart. I want him here. Sure he would be driving me crazy. He would be one more child fighting with his brothers. His attitude would probably be growing in size since he would officially be a middle schooler. I am guessing his hair would be a focus. He had the most beautiful head of hair. So many guesses. So much wondering. So many dreams turned to angel dust. In a matter of moments.

All of the wondering gets to be exhausting and overwhelming. The memories aren’t any less emotional but at least they don’t involve guessing. Christian was due on Christmas but was born on December 23rd. We brought him home Christmas Day. As first time parents my husband and I woke to find a beautiful baby boy being rolled in to the hospital room on Christmas morning. He was all snug and sleeping in an oversized stocking. It’s the same stocking that hangs on our mantle each year. The sight was so breathtaking and life changing. This little being would be coming home with us in just hours.

As we made our way home we passed our church. The priest had just finished Christmas mass and was outside. We asked him to bless Christian and he did. One would think a child who is blessed only moments after leaving the hospital would be destined for greatness and safety. The first yes and the second no; at least not in the way we were hoping. We could never conceive of what was to come in his life.

As Christian grew, we grew. Firstborn children teach their parents multiple lessons. Christian was not the best sleeper. He didn’t follow any of the examples of the types of babies they talked about in parenting books. The feeling of failing as a mom plagued me. These feelings not entirely unusual for a first time mom, but confusing nonetheless. One thing that was not confusing, even when I was sleep deprived, was how much I loved him. Again, as the firstborn, every little thing he did made my heart swell ten times. As much as I love my other boys it was different with them because it wasn’t my first time experiencing it.

As his personality developed his mischief did too. This was always a character trait I loved in little boys. As a mom to a mischievous boy it was still adorable but tried my patience!! Now I had to somehow figure out how to refine it without completely making it go away. This did not help my own issue of feeling like I was failing as a mom. When you have a child who does not conform to how others think he or she should behave it can be mortifying. Others make it known by looks, words and glances that your child is behaving poorly. There have been many times I witnessed this in a store and offered words of comfort to the parent instead of the opposite. As much as we love our children, it doesn’t ever feel great to be judged negatively by others.

Christian was not only mischievous but he was a biter! Oh yes he wanted to help me experience it all in his six short years of life. At a mommy and me class he bit a little boy on the back. The mother was not happy but seeing as this was her fourth child, I am sure she had encountered a similar situation before. Her dirty looks and unkind words said otherwise. We made it through. Christian eventually received Occupational Therapy during his preschool years. It definitely helped. Oddly enough I got a call from his therapist the second week she was supposed to see him. She had to cancel because she lost her son suddenly. Heartbreaking. Christian continued on with another wonderful therapist and they were able to make headway with some of his behaviors.

Christian’s larger than life personality was never able to be truly tamed. I wouldn’t have wanted it to be. There were times I wished he would tone it down just a little. He definitely did a lot of living in his short time on Earth. I always say he did everything 100%. All his mischief and love and passion and hugs and smiles and tantrums were at level 100! I’m not sure how we were chosen to be his parents. It’s something we are forever grateful for.

Tomorrow will mark his fifth birthday in heaven. No one should have to celebrate the day their child was born without their child here. We are not alone in this, unfortunately. Tuesday will mark his fifth Christmas in heaven. He is sure to be leading some giant celebration up there! His party in heaven will be mirrored in the smiles, joy and excitement on the faces of my children and nieces as they celebrate the magic of Christmas. It will help to buoy my mood but it will not take the pain away. The longing will remain for the best Christmas gift I ever received. Love to heaven…

Ramblings and Gifts

It’s that time of year again when the air is filled with the magic of the holidays… and the sadness for some. I’m not alone in my struggles and I do not wish to put a damper on anyone who is not feeling sadness. However, I know that there are millions of other people out there struggling as well. Some for the same reason, some not. I don’t have any words of wisdom today. More a rambling of thoughts.

This was an exceptionally tough week. My cousin, Tonia, would have turned 50. It had me reflecting on her and a trip all of the females in my family took when she turned 40. The first thing that comes to mind are the laughs we all shared. We had a great time. It was a beautiful tribute to what the holidays represent to me – enjoying time with those you love. Tonia bought each of us an ornament to commemorate the trip. It will be bittersweet, as it is every Christmas, to place that ornament on my tree.

Last week was also an emotional week. My youngest son turned six. All of the “firsts” he is experiencing as a six year old were Christian’s “lasts”. To use a very intellectual term blah. Each time I think about that the tears spring to my eyes. He seems so little and yet Christian seemed so big when he was six. I found the list he wrote to Santa that year. Immediately my memory sparked. My bright, brown eyed boy wishing for the magic of Christmas to be bestowed upon him. His heart so young and pure. The excitement of the season buzzing all around. This year as his brothers write their Christmas lists, search for the elf and decorate the tree, Christian watches from above.

Grief is a spiral and sometimes it spirals back to an intensity level that can only be sustained for a short amount of time. When this happens I retreat back to survival mode. One of the most important things I did early on, in survival mode, was find one positive thing in each day. Yesterday while preparing lunches for my boys and running around, completing daily morning tasks, they were playing a game. It was a beautiful sight. They were playing and laughing. No one was whining or crying. Whoever was losing was not lamenting over it. They were enjoying their time together. It was a gift. It could have easily been missed by me in my frenzy. I’m sure sometimes I do overlook these moments. Yesterday I didn’t and it made my day. Wishing you all these beautiful gifts of the season and all year through. Love to heaven…

Quick Thought: Humor Is A Lifesaver

We just got the call here in New York that today is a snow day. I couldn’t resist writing a little something to go with this humorous meme. Give me an hour or two after my kids are awake and my disposition might not be as light! For now though everyone is still sleeping in their own beds. That means no one is smushed so close up against me that I have to get out and walk to the other side of the bed so I don’t fall out! That means no one is rubbing my earlobe. That means creepy baby’s shell of a leg is not sprawled across my face – don’t ask. That means no one has peed on me overnight. That means I have glorious time to myself! Sure it’s way earlier than I want it to be but these may be the only moments I get to myself!

These moments, these times when they cuddle with me in bed, and use me as their body pillow, will be something I miss. I know I will. It’s just hard to miss something when it is part of a regular routine. I can remember with Christian being so paranoid when I got frustrated with him because I wasn’t enjoying him enough. How many times do people say,

“You will miss these days.”

Each and every time I heard that or thought that, I became stressed. That stress caused me to be even more short tempered. In the end that reminder may not be the best. Keeping the idea that I will miss this someday in the back of my head seems a much better option for me than dwelling on it.

  • It’s easy to think about how much I will miss this time when my kids are grown. For the most part I am successful at staying present and enjoying my children. Even before losing Christian I feel that this was my approach to parenting. However, after hearing the “poopy song” 56 times in an hour my excitement about being present dims. Then comes the nerf to the butt. Throw in a little fighting and I am looking to lock myself in the bathroom!
  • It goes without saying that every parent has been there. It also goes without saying that we all love these little antagonizers more than anything. It took me a long time after losing Christian to be okay with these feelings. My heart was plagued with such pain. I would give anything to get him back, even at his toughest moments. A friend of mine taught me the power of the word “and”. This changed a lot for me.
  • I can be a grieving mother who would do anything to get her son back AND still be a person who gets frustrated with her living children. In no way does this mean I don’t love them more than anything. It just means I am a human.

  • The love I have for my children is unmeasurable. I will miss when my boys don’t cuddle with me. Hearing “mommy” in their little voices melts me every time, unless they are whining or screaming. There is so much to be missed but it makes it so hard to enjoy if we think that way.
  • Parenting is hard. Sometimes it makes your heart swell a hundred times. Other times it makes you feel like sticking a fork in your eye. Such is life. Humor will get us through those moments that make us want to pick up the fork. One thing I have learned is that humor heals. If it weren’t for the nerf to the butt what would we miss in twenty years?
  • Today parents of children waking up to find out that school is closed, find humor. When you have refereed the 73rd fight and can’t take it anymore, find something humorous. When you have dressed and undressed them for snow for the tenth time, when you have cleaned pee off the floor for the thousandth time, find humor. If you can’t find that, find wine! Both will get us through. Sending good vibes and hopes for humor to all of you today! Love to heaven…
  • Hope Is Essential For Broken Hearts

    Missing you today. Wishing things were different in so many ways. Tired of feeling like I am fighting the current of life so hard. These feelings will pass. I’ve been told, and learned from experience, that no feeling lasts forever. These aren’t my feelings all the time, but today they are.

    Maybe it was all the joy and excitement of yesterday. Maybe it’s the start of the “holiday season”. Maybe it’s that we are about to celebrate another family milestone without you this weekend. I don’t know. All I know is that if you were here, yesterday would have been very different. It’s hard to believe I would have a ten year old boy.

    After the raucous celebrations and vibrant costumes of yesterday it is time for some peace and quiet for my heart. The stark contrast from yesterday to today in the weather even echoes melancholic emotions. Just like the weather will not stay the same, neither will my strictly melancholy feelings. I repeat this because it offers me hope.

    Sitting in my emotions and processing them is essential. Hope is also essential. While I feel my feelings, experience them and process them, I also need to know they won’t be forever. It is so intense when grief floods me. If the intensity was always like this, I wouldn’t be able to function.

    I miss you. This is something I feel every day. Today it just hurts more. I wish things were different in so many ways. Love to heaven…

    Freedom In Sharing Faults

    We all have faults. Some of us are better than others at accepting our faults or shortcomings. Some of us have a more difficult time. I fall into the latter category. It is easier for me to accept other’s faults than my own. I am kinder to others than myself when the topic of personal faults comes up. I’m not alone.

    No one is perfect. How many times have we heard that old adage? We hear it repeatedly because it’s true. Yet so many of us strive for perfection or close to it in ourselves. When our shortcomings present themselves we feel disappointed and angry. Many times for me this turns into shame and then the mean voices begin. I wish I could tell you how to make those stop. That is still a work in progress for me. What I can tell you is that sharing and connecting with others helps in quieting those voices.

    Healing is in our own heart’s message. Once we hear it we can surround ourselves with people who reflect that message. Share your pain. Healing is in connection.             – Cara Martinisi

    It’s no secret that I wear my heart on my sleeve. My writing is proof of that. I don’t believe this kind of sharing or level of sharing is for everyone. I do believe that opening up to another human being who you feel a deep level of connection and comfortability with will change your life. I don’t mean opening up about the difficulties you have on the surface. That’s great too, and we all need that, but when we go deeper in our relationships, friendships and connections that is when your faults and shortcomings lose the momentum to instill shame.

    Shedding the shame of our faults and learning to make peace with them can only make us better people. Connecting, beautiful soul connections, only enrich our lives. Many times when I ask Christian what message he wants me to share with everyone it revolves around kindness and connection. There is something there. The more connected we are to each other, the more kindness spreads.

    Connection to others lets us know that we are all important. Children are more visibly receptive to this than adults, but that is only because they are more open. Engage a child and see how their face changes. When we take interest in each other’s lives we are interwoven emotionally. This is valuable on all levels. It is important to connect casually, deeper and so deep that your soul shines through. Connection promotes kindness. Kindness helps us to be nicer to ourselves and those around us. If you want to quiet your mean voices, if  you want to take away the shame associated with your shortcomings, connecting will help. Love to heaven…

    A Picture Of Hope

    Anyone who has witnessed a family losing a child has seen hopelessness with their own eyes. When a child prematurely passes way, everything is questioned. The tunnel of life appears permanently dark with no light to be found.

    Oxford Living Dictionary defines hope as, “Grounds for believing that something good may happen.” Merriam-Webster Dictionary defines hope as, “to expect with confidence”. Child loss leaves us devoid of any of these feelings. It’s heart breaking, life altering and devastating.

    I am a grieving mother who has been living for four years, 1 month and 19 days without my oldest son. My life consisted of months when I couldn’t feel hope for more than a moment at a time. It doesn’t take much to remember that level of hopelessness. Personal journal entries clearly outline this.

    Eight weeks ago you were physically still here. My heart physically hurts that I won’t see you again. I truly don’t know how I will go on.

    These words still ring true. My heart physically hurts. Sometimes I question how I will go on. This question comes up very rarely anymore because I know how I will go on. I will go on living with your spirit next to me and with me. Still these raw emotions are under the scab that covers them. They are not as fresh or vulnerable as they once were but they are still there.

    The thing is you’re in every living memory from the past six years. Making new memories means making them without you. I don’t want to. Then the finality of your life is real because you are not making memories. You are just a part of some, just there in spirit. That’s not enough for me.

    It is still not enough for me, you just being here in spirit. We haven’t made new memories with you physically for over four years. I will never be okay with what happened but I have learned to continue on. There are many new, happy memories that have been created. You are in some of those new memories even. Yes, it’s only in spirit but you are not totally absent from our lives as I feared when we first lost you.

    It is my hope that any family who is new to child loss or in a dark place will receive my message loud and clear. There is hope. You can’t feel it now. You can’t imagine it now. You may not even want to know about it now. It’s there. It’s waiting in the wings for when you least expect it.

    Hope starts to slip into your day with a smile. It’s so quick at first your don’t even notice it. Then it lingers for slightly longer. Each time hope presents itself it buoys your soul a little at a time. One day you feel joy. Again, it’s so quick that you don’t even realize it. It’s gone as quickly as it comes. Each time you see positivity, you find people who have been in difficult situations and are thriving. Each time someone honors your loved one, you get a surefire sign from your beloved. Each time hope grows. It grows until you start to see glimmers of light. The light gets brighter and brighter.

    It dims sometimes and sometimes it stays dim for a few days but it continues to burn. That’s hope. As long as you continue living, hope will be there. I didn’t believe it when we first lost Christian. Slowly I had to see for myself. I promise it will not be this way forever. The stabbing pains will lessen. You will be able to breathe again. Nothing will be the same but there is hope. You will feel joy. You will smile. You will even receive messages from your child. It is in your future. There is hope. Love to heaven…

    Quick Thought: Finding Soul

    Writing and helping others is my true soul work. It is what feeds my soul, grows my soul and what makes me happy. It is unconceivable to me that it took losing Christian to dig deep enough to follow my heart and combine the two. It’s not that I wasn’t aware of my gravitation toward these occupations and interests. It’s that I didn’t truly find the strength of my soul until I lost him.

    Before I experienced child loss I was able to rely on my mind to guide me. Things went as planned and none of the bumps in the road were so life altering that I had to fully trust  my heart and soul. After losing Christian nothing was what it seemed. All my beliefs were completely obliterated. Upon embarking on my healing journey I learned that my soul is to be trusted. Even more than my mind. The previously thought impossible has happened to me. Now I am living the previously thought impossible life. Through living life after child loss I found my calling and the way I am intended to honor Christian’s life. It’s all right here, in my soul.