depression – Page 3 – Cara Martinisi

Hope Is In Every Step

Hope. We all need it to survive. After Christian passed away it was completely unfathomable to me that I would ever feel it again. Yet I have and I do. That is not to say that it doesn’t waver, because it does.

This particular topic is on my heart tonight as I’ve just returned home from an amazing workshop at LiveOnNY. LiveOnNY is a non profit organization that works to procure organ donation in the Greater New York area. The beautiful thing about this organization is that they are actively working with the donor families after their loss.

When Christian passed away I knew immediately that his wishes would be to help someone else in need. After all, our body only houses our soul. Without hesitation we answered “yes” when they asked if we wanted his organs to be donated.

Right there we chose hope. There was no chance of our little boy coming back to us but there was a chance that his organs could offer hope for someone else, and they did.

In the moment when they asked us about organ donation I didn’t feel any bit of hope. I didn’t feel it after we said yes. I didn’t feel it for a very long time. We are four and a half years walking this journey and there are still days when hope eludes me. Most days though it is somewhere in my soul.

How did I get to a place where I feel any semblance of hope? Sometimes even I wonder. I know I have an abundance of love and support that surrounds me. That certainly helps. I also know that I made a conscious decision to carry on. It is something that I work on constantly. Some days it feels fairly simple. Other days it requires my every effort, every minute of the day. I feel like I am walking through sludge.

Self care, a topic of today’s workshop, is a large part of me being able to find hope again. From the very start I tried anything that I thought might offer the tiniest bit. That included acupuncture, therapy, walks with friends, yoga, art, exercising, writing, attending grief groups and other activities that are not coming to mind right now. Some worked and some didn’t. Some I still utilize as self care tools today. Most importantly my willingness to try things helped me to find a way to survive this unthinkable loss. The key to hope is finding what works for you.At today’s workshop I met many amazing people. For some the loss was extremely new and raw. It took such courage for them to be there. Their desperation to find any sort of relief written all over their faces and evidenced in their tears. My heart broke for them. It is not so long ago that I was in their place. Even in all I tried I don’t think I had the courage to attend a workshop like this so soon after our loss.

I saw myself in these people. One woman, a writer, unsure if she will ever write again. Another family of a mother and three daughters who lost their only brother, all clearly devastated. I was them. I am them. Time has just taught me how to integrate the pain into my life today. Sadness and joy live alongside each other in my world, as it will for them.

That’s hope. Newly grieving people feel devoid of it, but they don’t realize that they are already building it. Every step one takes to find relief from the blinding pain allows hope to filter in. They may not feel it today, tomorrow or next week. It takes time to chip away a big enough space to see the hope shining through. It will. Each time one wakes up and makes it through another day. That’s hope. Pepper it with a few healthy attempts to relieve the pain and you are building hope. It doesn’t feel like it, but you are.

Thank you to the amazing staff at LiveOnNY for the workshop you led. As one participant said it so beautifully to them, “You should feel great about yourselves today, knowing you are making a difference in lives”. They were my dose of hope today. Love to heaven…

Expectations and Truth

Yesterday was one of those days. You know what I am talking about. A day where just about all you can handle is sitting on the couch and watching movies. My boys went into school at 10:30 and were home by 1:30, due to the weather. Thank God they made it home safely. While I had hoped for a longer amount of childless time, I am so grateful that the school district made a smart decision.

It definitely interrupted my movie watching though. Between being asked for snacks, arguing over every little thing and then being told that they really didn’t want the dinner I had cooked I was ready to explode. Then when I said, “I need a break!” It was met with my six year old’s answer, “That’s because you hate us.” Aaah, yes, pile on the mom guilt.

Being a mom is hard. Being a parent is hard. Being an adult is hard. Anyone who is reading this can probably agree with at least one or all of those statements! How can it be that some days you feel on top of the world like you have it all under control and the next day you are drowning? Some of this is certainly due to my circumstances but I do not believe that only bereaved parents feel this way. I know that is not true.

Recently I was having a conversation with a friend about how a few nights ago the bedtime routine went splendidly. So much so that Anthony, my eight year old, thanked Nicky for the hug he gave him in school that day. Then Nicky thanked Anthony for being included in a game with his friends. It ended with them both saying, “I love you” to each other. Not sure who those kids were but before becoming a parent I actually thought that there would be way more days like that.

When we examine what our beliefs or expectations are compared to reality, accepting reality can sometimes be so hard. In the case of raising children, you learn pretty quickly that there is a huge divide between what you expected and the truth. I will never forget a time when Christian threw a screaming fit in an outdoor mall and I had to carry him out. It was humbling. That’s for sure. At the time I felt like the biggest failure as a parent. I was still stuck in the pre-child mindset that my child would never do that. I can actually hear some of you laughing out loud because you know what I mean!

The me of today knows that the exact opposite was true. I was doing a great job as a parent that day. Christian was doing a great job of being a kid. We were both doing exactly what we were supposed to be doing. (Don’t even get me started on the supposed to’s.) Nonetheless, it took time, experience and multiple children to learn this.

Expectations are the measure by which we define where we want to be. If we set them too low, we are not accomplishing what we are capable of. If they are too high we experience failure. There are some areas of my life where I am in tune with where my expectations need to be. Other areas I am still learning. The saying, “Patience is a virtue” is a mantra that I repeat quite often. It takes patience, time and experience to first learn where to set your expectations, then how to reach them, then to actually reach them. It is certainly not a linear process. We must experience some days on top of the world and others when we are drowning.

Today I am right in between. I’m not exactly on top and I’m not exactly drowning. After all that madness yesterday I couldn’t bear to even deal with the bedtime routine. I collapsed into bed and asked my husband to put both boys to sleep. Even though he had a long day dealing with the snow, important meetings at work and coming home to a crazy wife who was still the pajamas he left her in, he did. Thank God. Right before Nicky went to bed he came to me and gave me a huge hug and kissed me tenderly on the top of my head. Just like that I melted. It was a kind of nourishment for the next day, a kind of payment for parenting being so difficult. Never in my imagination could I have known just how hard it would be to parent children. I also could have never imagined just how much I would love these children. Love to heaven…

Quiet Mind Leads To Guidance

Aahhh… Pinterest. I love you so. I pin TONS of things to TONS of boards. There are my select boards which I review periodically. Then there are the boards I hardly look at after creating. Today while looking back at my inspirational board I was reminded of a very important message, “As I quiet my mind I can more clearly hear my inner guidance.” I needed to have this reminder today. The harsh voices have been rearing their ugly heads for the past week and it has really interfered with me being in tune with my inner guidance.

This morning, after an uninterrupted night of sleep (I didn’t even pee until 5am!), I cleared my head and got in touch with my inner guidance. I feared that my terrible, nasty self talk had finally trumped inner guidance. I feared that it was scared away. It was not. It just needed some attention and quiet!

Some of you may wonder what any of this has to do with losing Christian. It may seem as if I am self righteously rambling on. PsychologyToday.com states, “Activations of lower, more primitive areas, including the fear center, are high, while higher areas of the brain (also known as cortical areas) are underactivated. In other words, if you are traumatized, you may experience chronic stress, vigilance, fear, and irritation.” My insecurities are a major irritation. In the past I was able to expend energy to keep them at bay. Since losing Christian my energy expenditure has shifted to easing the above experiences. There is little reserve for my insecurities. To say the least, this interferes with getting in touch with my inner guidance.

My insecurities revolve around self degradation and the question, “Am I enough?”. When it is filtered through my grief and trauma it becomes increasingly difficult for me to rebuke these thoughts. My therapist has provided me with many tools and coping mechanisms along the way. For the most part these work to ground me and bring me back to the present. Sometimes though I fall into the downward spiral.

In the solitude of the morning however, while breathing and quieting my mind, I was able to pull out of that spiral. I connected to my own heart, in which I receive guidance and messages from Christian. I quieted my mind and just listened. As he always does, he helped me to understand what the next step on my journey is. For the hope he provided me, I am very grateful.

So don’t ever discount those ideas you pin and don’t forget to periodically review them! You never know where it might lead you. Most importantly remember to quiet your mind when you need to get some inner guidance. Love to heaven…

Emotional Ramifications of Song Lyrics

Music is a universal language. It can change one’s mood instantly. For some it is part of their daily self care repertoire. Both playing and listening to music have tremendous value and affect emotional states. Mona Lisa Chanda, PhD, found that “music improves the body’s immune system function and reduces stress. Listening to music was also found to be more effective than prescription drugs in reducing anxiety before surgery“ (Trends in Cognitive Sciences, April, 2013). The positive effect musics has on us is evident.

The power of music lies in its strength to influence. Society, especially young adults, tend to take the lyrics of songs and internalize them. If the lyrics are relatable and the artist identifies with feeling pain and persevering through, it is a positive influence for the listener.

The issue emerges when the lyrics are not so positive. Most recently the song, “Psycho” by Post Malone has reached the top of the charts. It is played multiple times a day. The tune is catchy and I often find myself singing along, until one certain line. Every time I hear the line, “Had so many bottles, gave ugly girl a sip”, I cringe. As a forty year old woman who has struggled with self confidence all my life, this line angers me. I have lived through enough to know that our appearances are not the most important thing in life. My concern is for the younger listeners.

Listeners with low self confidence and fragile egos are susceptible to being pulled down even further. To a young girl who struggles with body image, these words are damaging. If she is already hearing negative voices about her own appearance, she is very likely to internalize this. Of course the lyrics are not expressly directed at her. Nonetheless the message is that ugly girls don’t deserve the same as pretty girls. Post Malone’s message is that the “ugly girl” got a sip because he “had so many bottles”. This sends the message to girls who perceive themselves as ugly that they are not enough.

An individual who already has negative self talk occurring in his or her head does not need any more fuel to feed the fire. The lyrics from Post Malone’s song only add more fuel. In addition, the popularity of the song means hearing it multiple times a day, adding to the frequency of negative thoughts. In the article, The Toxic Effects Of Negative Self Talk, Elizabeth Scott, MS states, “Studies have linked negative self-talk with higher levels of stress and lower levels of self-esteem. This can lead to decreased motivation as well as greater feelings of helplessness. This type of critical inner dialogue has even been linked to depression“.

While the issue truly lies inside the one whose perception is making her feel this way, it does not benefit anyone to perpetuate these feelings. Freedom of speech and expression is important but just as we censor out curse words for the general listening public we may need to examine other degrading phrases as well. This may sound extra sensitive to some readers but if you have ever had any experience with an eating disorder, someone dealing with depression or someone who is suicidal, the idea of censoring offensive lyrics would be more appealing.

Music weaves it’s way into the soul. When it is uplifting and beautiful so are its effects. When it includes negative messages, its effects are negative. So many of us struggle with body image. It is ultimately the individual’s responsibility to work through these issues. If we can avoid furthering these issues and adding to them with simple general listener censoring, it will benefit society. Love to heaven…

Don’t Borrow Trouble

A few weeks ago while my husband patiently carved pumpkins with my boys I was reminded of Halloween 2010. Anthony, my middle son, had just been born, exactly one week before Halloween. In an effort not to diminish the excitement of Halloween for Christian, my parents carved his first pumpkin with him.

It doesn’t take much for me to see them in the kitchen. The newspaper was spread across the table. Two large, bright orange pumpkins sat ready to be carved. Christian, full of energy, wore an old collared white shirt. This was to protect his timely Halloween pajamas. As the first child he always had pajamas for the holidays and only wore them at the appropriate time of year.

Christian’s excitement vibrated throughout the house. The brightness of his smile rivaled the bright orange hue of the pumpkins. My parents assigned him the appropriate jobs of picking which shapes he wanted the eyes, smile and nose to be. After cutting off the top they also gave him the job of scooping out the pumpkin gunk. For an almost three year old boy, this was a great task! He sat with his arms elbow deep in the pumpkin scooping out the flesh.

This is how life is now. I live half in the past and half in the present. Each time my boys experience an event, it is linked in my mind to when Christian experienced it. Sometimes I share my memories with my husband and my boys. Sometimes I keep them to myself. I clutch my memories just as tightly as an elderly woman holds her purse. Fear is the same driver for both of us. The fear for me is that somehow these memories will be taken from me by time.

Time is my enemy and also my friend. The cyclical nature of it helps to perpetuate memories. The repetitiveness of special days, holidays, places we went and things we did are burned into my memory. It is both overwhelmingly sad and beautiful at the same time. As much as the current daily events also spark my memories and sometimes intense sadness, it scares me when his life won’t be as relatable to my children anymore. My fear is as they move out of the easily comparable age range, memories will dissipate and become less relevant. In some ways that is unavoidable. There are numerous milestones and events that Christian never got to experience. Right there the relatability factor is affected.

As much as the above is true I am reminded, as I write this and reflect, of the many things I “thought” child loss would encompass. Some which came to fruition and some that didn’t. The thing is we never quite know what will happen. Immediately after losing Christian I feared my boys would never remember him. This is worlds away from the truth. I worried that my boys would carry on without carrying a piece of their brother with them. Again, quite the contrary. So as much as I project what might occur in the future, I am well aware that none of it may happen. One of my mentors often reminds me, “Don’t borrow trouble”. We have enough in our daily lives. Why become anxious and spend energy worrying about something that may never happen? Love to heaven…

Hope Is Essential For Broken Hearts

Missing you today. Wishing things were different in so many ways. Tired of feeling like I am fighting the current of life so hard. These feelings will pass. I’ve been told, and learned from experience, that no feeling lasts forever. These aren’t my feelings all the time, but today they are.

Maybe it was all the joy and excitement of yesterday. Maybe it’s the start of the “holiday season”. Maybe it’s that we are about to celebrate another family milestone without you this weekend. I don’t know. All I know is that if you were here, yesterday would have been very different. It’s hard to believe I would have a ten year old boy.

After the raucous celebrations and vibrant costumes of yesterday it is time for some peace and quiet for my heart. The stark contrast from yesterday to today in the weather even echoes melancholic emotions. Just like the weather will not stay the same, neither will my strictly melancholy feelings. I repeat this because it offers me hope.

Sitting in my emotions and processing them is essential. Hope is also essential. While I feel my feelings, experience them and process them, I also need to know they won’t be forever. It is so intense when grief floods me. If the intensity was always like this, I wouldn’t be able to function.

I miss you. This is something I feel every day. Today it just hurts more. I wish things were different in so many ways. Love to heaven…

Freedom In Sharing Faults

We all have faults. Some of us are better than others at accepting our faults or shortcomings. Some of us have a more difficult time. I fall into the latter category. It is easier for me to accept other’s faults than my own. I am kinder to others than myself when the topic of personal faults comes up. I’m not alone.

No one is perfect. How many times have we heard that old adage? We hear it repeatedly because it’s true. Yet so many of us strive for perfection or close to it in ourselves. When our shortcomings present themselves we feel disappointed and angry. Many times for me this turns into shame and then the mean voices begin. I wish I could tell you how to make those stop. That is still a work in progress for me. What I can tell you is that sharing and connecting with others helps in quieting those voices.

Healing is in our own heart’s message. Once we hear it we can surround ourselves with people who reflect that message. Share your pain. Healing is in connection. – Cara Martinisi

It’s no secret that I wear my heart on my sleeve. My writing is proof of that. I don’t believe this kind of sharing or level of sharing is for everyone. I do believe that opening up to another human being who you feel a deep level of connection and comfortability with will change your life. I don’t mean opening up about the difficulties you have on the surface. That’s great too, and we all need that, but when we go deeper in our relationships, friendships and connections that is when your faults and shortcomings lose the momentum to instill shame.

Shedding the shame of our faults and learning to make peace with them can only make us better people. Connecting, beautiful soul connections, only enrich our lives. Many times when I ask Christian what message he wants me to share with everyone it revolves around kindness and connection. There is something there. The more connected we are to each other, the more kindness spreads.

Connection to others lets us know that we are all important. Children are more visibly receptive to this than adults, but that is only because they are more open. Engage a child and see how their face changes. When we take interest in each other’s lives we are interwoven emotionally. This is valuable on all levels. It is important to connect casually, deeper and so deep that your soul shines through. Connection promotes kindness. Kindness helps us to be nicer to ourselves and those around us. If you want to quiet your mean voices, if you want to take away the shame associated with your shortcomings, connecting will help. Love to heaven…

A Picture Of Hope

Anyone who has witnessed a family losing a child has seen hopelessness with their own eyes. When a child prematurely passes way, everything is questioned. The tunnel of life appears permanently dark with no light to be found.

Oxford Living Dictionary defines hope as, “Grounds for believing that something good may happen.” Merriam-Webster Dictionary defines hope as, “to expect with confidence”. Child loss leaves us devoid of any of these feelings. It’s heart breaking, life altering and devastating.

I am a grieving mother who has been living for four years, 1 month and 19 days without my oldest son. My life consisted of months when I couldn’t feel hope for more than a moment at a time. It doesn’t take much to remember that level of hopelessness. Personal journal entries clearly outline this.

Eight weeks ago you were physically still here. My heart physically hurts that I won’t see you again. I truly don’t know how I will go on.

These words still ring true. My heart physically hurts. Sometimes I question how I will go on. This question comes up very rarely anymore because I know how I will go on. I will go on living with your spirit next to me and with me. Still these raw emotions are under the scab that covers them. They are not as fresh or vulnerable as they once were but they are still there.

The thing is you’re in every living memory from the past six years. Making new memories means making them without you. I don’t want to. Then the finality of your life is real because you are not making memories. You are just a part of some, just there in spirit. That’s not enough for me.

It is still not enough for me, you just being here in spirit. We haven’t made new memories with you physically for over four years. I will never be okay with what happened but I have learned to continue on. There are many new, happy memories that have been created. You are in some of those new memories even. Yes, it’s only in spirit but you are not totally absent from our lives as I feared when we first lost you.

It is my hope that any family who is new to child loss or in a dark place will receive my message loud and clear. There is hope. You can’t feel it now. You can’t imagine it now. You may not even want to know about it now. It’s there. It’s waiting in the wings for when you least expect it.

Hope starts to slip into your day with a smile. It’s so quick at first your don’t even notice it. Then it lingers for slightly longer. Each time hope presents itself it buoys your soul a little at a time. One day you feel joy. Again, it’s so quick that you don’t even realize it. It’s gone as quickly as it comes. Each time you see positivity, you find people who have been in difficult situations and are thriving. Each time someone honors your loved one, you get a surefire sign from your beloved. Each time hope grows. It grows until you start to see glimmers of light. The light gets brighter and brighter.

It dims sometimes and sometimes it stays dim for a few days but it continues to burn. That’s hope. As long as you continue living, hope will be there. I didn’t believe it when we first lost Christian. Slowly I had to see for myself. I promise it will not be this way forever. The stabbing pains will lessen. You will be able to breathe again. Nothing will be the same but there is hope. You will feel joy. You will smile. You will even receive messages from your child. It is in your future. There is hope. Love to heaven…

Grieving Is Like An Ocean

How many times have we admired a body of water ranging in shades of turquoise from light to dark? The most desirable beach locations feature coveted ocean views where the white sand reflects the light of the sun. In areas where the depth of the water increases or where coral formations are found beneath the surface, the water color darkens. As I sit here admiring this exact view it occurs to me that these waters mirror my life.

During the bright spots in my life everything is clear. It is easy to see where I am going. My feelings are soft, like the sand. They sit below the surface with smooth waves washing over. As the sun graces me with its warmth it is met with a reflection of joy, happiness and contentment.

In the darker, deeper times my feelings are below the surface. They are complicated. The sun still shines on them but my positivity does not radiate back. The coral represents difficult situations and feelings. If I get pulled down too far or caught in the coral, difficulty arises. My breath runs out and I am unable to maneuver my way to the surface.

Life cannot be lived solely in the clear waters. At some point the undertow pulls us into deeper, darker waters. We all face this. Attempts to swim against the undertow, or ignoring the pull, will only lengthen our time away from clear waters. The strength comes in our ability and willingness to swim parallel to the shore. We must feel our feelings. We must stay with those feelings until they are felt and processed. Then we are able to return to clear, calm waters. We may get drawn back in to the deeper areas again, but the more we practice swimming parallel to shore, the more familiar this becomes to us.

We must always remember that the ocean as a whole is beautiful. The calmer, clearer waters are great for relaxing and reflecting on our lives. It is in the deeper, darker waters where we see the stunning underwater life. It cannot be seen above the water but under the surface there is living beauty.

Four years have passed since I lost my son, Christian. Many times I have been pulled into the deeper, darker waters. In the early days of my grief journey I fought the pull. I floundered under the crashing waves, unable to see the surface, let alone rise up for air. My mind could not comprehend a life without him. It took a long while to see any of the living beauty in those dark waters. When I finally did begin to see the beauty I slowly stopped floundering and rose to the surface. I remained there for a while. Occasionally I would take a few strokes parallel to the shore. Those few strokes left me completely depleted of energy.

It took time to build my stamina. Time, patience, practice and faith. Finding a good trauma therapist was key for me. He truly helped me to process my feelings in a safe space. He also pointed out to me that each time I had a setback and disappeared under the water, I always rose back up. When you are grieving that water is not just dark, it’s black and oppressive. You are not quite sure which way is up. There is a great fear that you will never make it to the surface again, but you do. You keep repeating this pattern as more and more time passes in between being pulled under. Slowly, finally, you gain faith that you will always rise back up. You learn ways to ensure that you will rise back up to the surface. You put those ways or routines into practice and follow through with them even if you don’t feel like it. They are insurance. Insurance that you will survive and thrive. It’s not easy but it’s worth it. Love to heaven…

Hold The Tears, Mom

My boys are off to school. Even Nicky, my Kindergartner, went off willingly. Not before telling me, “Mom, don’t cry. If you cry, you will make me cry”. His perception and true understanding of the situation was more progressive than I knew. Nothing but a smile was plastered to my face all morning. I held my tears. I did. I gave him a giant hug and kiss. Then he got on the bus, holding his big brother’s hand. He hesitated just the slightest bit, only enough for a mother to notice. Off the bus went and my tears started flowing.

I decided a few weeks ago that I would send Nicky on the bus with Anthony, his older brother. I contemplated meeting the bus at school but decided against it. Mother’s intuition told me that this would make for the best transition. Well, emotion took over and I hopped in the car to spy on him. Knowing that the Kindergarten classes line up outside before going into the building, allowed me to steal a glimpse of him. Luckily he didn’t see me. It was hard to tell the exact emotion on his face but I could see that he wasn’t crying. That was all I needed to know.

My anxiety has eased slightly but I will feel much better once he is home. My tears have stopped but his words resound in my head. You see, Christian said those same words to me just a few days before he was taken. The scene has remained one of my sharpest memories of his last days. It was a steamy August night and I was completely overwhelmed. While unsuccessfully attempting to get my three young children to go to bed, my middle son had an accident and my youngest son was crying and carrying on about something else. My emotions got the best of me and I burst into tears. Christian responded by speaking the same words Nicky spoke. In hindsight it feels as though he was foreshadowing the future. Hearing Nicky tell me not to cry today snapped me right back to the moment when Christian said those words. There have been many times I’ve heard Christian’s voice in my head when crying over missing him.

Obviously today’s situation differs from the one with Christian, but the heartfelt words spoken by both of my boys have been carved into my soul. Today my youngest child is spreading his wings. My middle child continues to successfully fly. My oldest child continues to spread his light. All three of my boys make me proud each day. I am no longer a mother to babies, toddlers or preschoolers but I am a mother to three children who are out in the world, leaving legacies. How can I cry about that? Love to heaven…